Caring for each other: a rapid review of how mutual dependency is challenged by advanced illness

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Joanne Elizabeth Parsons University of Warwick, UK

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Jeremy Dale University of Warwick, UK

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John I. MacArtney University of Warwick, UK

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Veronica Nanton University of Warwick, UK

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This review explores factors sustaining and threatening couples’ relationships when both have advanced illness. Qualitative studies exploring relationships between two people in a marriage/partnership with advanced illness are included. A total of 12 articles are included. Internal enabling factors, external enabling factors and threatening factors are identified. However, there is limited evidence internationally on factors sustaining these relationships and crisis factors. Little is known about the impact of crises on couples and the process of change from mutual dependency to carer and cared for. The article concludes that shifts by services towards holistic care focused on the couple’s needs are indicated.

  • Age UK (2020) Understanding frailty, www.ageuk.org.uk/our-impact/policy-research/frailty-in-older-people/understanding-frailty/.

  • Ahn, T. and Kim, K. (2007) Mutual caring of elderly Korean couples, Journal of Transcultural Nursing, 18(1): 2834. doi: 10.1177/1043659606294189

    • Search Google Scholar
    • Export Citation
  • Arksey, H. and O’Malley, L. (2005) Scoping studies: towards a methodological framework, International Journal of Social Research Methodology, 8(1): 1932. doi: 10.1080/1364557032000119616

    • Search Google Scholar
    • Export Citation
  • Cash, B., Warburton, J. and Hodgkin, S. (2019) Expectations of care within marriage for older couples, Australasian Journal on Ageing, 38(1): E1924. doi: 10.1111/ajag.12590

    • Search Google Scholar
    • Export Citation
  • CASP (Critical Appraisal Skills Programme) (2018) CASP (qualitative) checklist, https://casp-uk.net/wp-content/uploads/2018/01/CASP-Qualitative-Checklist-2018.pdf.

  • Grant, M.J. and Booth, A. (2009) A typology of reviews: an analysis of 14 review types and associated methodologies, Health Information & Libraries Journal, 26(2): 91108. doi: 10.1111/j.1471-1842.2009.00848.x

    • Search Google Scholar
    • Export Citation
  • Greenwood, N., Pound, C., Brearley, S. and Smith, R. (2019a) A qualitative study of older informal carers’ experiences and perceptions of their caring role, Maturitas, 124: 17. doi: 10.1016/j.maturitas.2019.03.006

    • Search Google Scholar
    • Export Citation
  • Greenwood, N., Pound, C., Smith, R. and Brearley, S. (2019b) Experiences and support needs of older carers: a focus group study of perceptions from the voluntary and statutory sectors, Maturitas, 123: 404. doi: 10.1016/j.maturitas.2019.02.003

    • Search Google Scholar
    • Export Citation
  • Grimmer, K., Falco, J. and Moss, J. (2004) Becoming a carer for an elderly person after discharge from an acute hospital admission, Internet Journal of Allied Health Sciences & Practice, 2(4): 13.

    • Search Google Scholar
    • Export Citation
  • Gysels, M.H. and Higginson, I.J. (2009) Caring for a person in advanced illness and suffering from breathlessness at home: threats and resources, Palliative & Supportive Care, 7(2): 15362.

    • Search Google Scholar
    • Export Citation
  • Kanasi, E., Ayilavarapu, S. and Jones, J. (2016) The aging population: demographics and the biology of aging, Periodontology, 2000(72): 1318. doi: 10.1111/prd.12126

    • Search Google Scholar
    • Export Citation
  • Khangura, S., Konnyu, K., Cushman, R., Grimshaw, J. and Moher, D. (2012) Evidence summaries: the evolution of a rapid review approach, Systematic Reviews, 1(1): 10. doi: 10.1186/2046-4053-1-10

    • Search Google Scholar
    • Export Citation
  • Kitko, L.A. (2010) The work of spousal caregiving in heart failure, Pennsylvania State University.

  • Lopez Hartmann, M., De Almeida Mello, J., Anthierens, S., Declercq, A., Van Durme, T., Cès, S., Verhoeven, V., Wens, J., Macq, J. and Remmen, R. (2019) Caring for a frail older person: the association between informal caregiver burden and being unsatisfied with support from family and friends, Age and Ageing, 48(5): 65864,

    • Search Google Scholar
    • Export Citation
  • Moher, D., Liberati, A., Tetzlaff, J., Altman, D.G, The PRISMA Group (2009) Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement, Public Library of Science (PLoS) Medicine, 6(7): e1000097. doi: 10.1371/journal.pmed.1000097

    • Search Google Scholar
    • Export Citation
  • Nanton, V., Munday, D., Dale, J., Mason, B., Kendall, M. and Murray, S. (2016) The threatened self: considerations of time, place, and uncertainty in advanced illness, British Journal of Health Psychology, 21(2): 35173. doi: 10.1111/bjhp.12172

    • Search Google Scholar
    • Export Citation
  • National Institute of Aging (2020) Aging in place: growing older at home, https://nia.nih.gov/health/aging-place-growing-older-home.

  • Nimmon, L., Bates, J., Kimel, G. and Lingard, L. (2018) Patients with heart failure and their partners with chronic illness: interdependence in multiple dimensions of time, Journal of Multidisciplinary Healthcare, 2018(11): 175. doi: 10.2147/JMDH.S146938

    • Search Google Scholar
    • Export Citation
  • OECD (Organisation for Economic Co-operation and Development) (2018) Health expenditure and financing. https://www.oecd.org/health/health-expenditure.htm

    • Search Google Scholar
    • Export Citation
  • Peng, I. and Yeandle, S.M. (2017) Eldercare policies in East Asia and Europe: mapping policy changes and variations and their implications, UN Women Discussion Paper Series, No. 19.

    • Search Google Scholar
    • Export Citation
  • Racher, F.E. (2002) Synergism of frail rural elderly couples: influencing interdependent independence, Journal of Gerontological Nursing, 28(6): 329. doi: 10.3928/0098-9134-20020601-09

    • Search Google Scholar
    • Export Citation
  • Radcliffe, E., Lowton, K. and Morgan, M. (2013) Co-construction of chronic illness narratives by older stroke survivors and their spouses, Sociology of Health and Illness, 35(7): 9931007. doi: 10.1111/1467-9566.12012

    • Search Google Scholar
    • Export Citation
  • Ray, M. (2006) Informal care in the context of long-term marriage: the challenge to practice, Practice, 18(2): 12942.

  • Tamdee, D., Tamdee, P., Greiner, C., Boonchiang, W., Okamoto, N. and Isowa, T. (2019) Conditions of caring for the elderly and family caregiver stress in Chiang Mai, Thailand, Journal of Health Research, 33(2): 13850. doi: 10.1108/JHR-07-2018-0053

    • Search Google Scholar
    • Export Citation
  • The Kings Fund (2019) Long-term conditions and multi morbidity, www.kingsfund.org.uk/projects/time-think-differently/trends-disease-and-disability-long-term-conditions-multi-morbidity.

    • Search Google Scholar
    • Export Citation
  • Torge, C.J. (2014) Freedom and imperative: mutual care between older spouses with physical disabilities, Journal of Family Nursing, 20(2): 20425. doi: 10.1177/1074840714524058

    • Search Google Scholar
    • Export Citation
  • Turner, M., King, C., Milligan, C., Thomas, C., Brearley, S.G., Seamark, D., Wang, X., Blake, S. and Payne, S. (2016) Caring for a dying spouse at the end of life: ‘It’s one of the things you volunteer for when you get married’: a qualitative study of the oldest carers’ experiences, Age & Ageing, 45(3): 4216.

    • Search Google Scholar
    • Export Citation
  • Zwakman, M., Jabbarian, L.J., van Delden, J.J., van der Heide, A., Korfage, I.J., Pollock, K., Rietjens, J.A.C., Seymour, J. and Kars, M.C. (2018) Advance care planning: a systematic review about experiences of patients with a life-threatening or life-limiting illness, Palliative Medicine, 32(8): 130521. doi: 10.1177/0269216318784474

    • Search Google Scholar
    • Export Citation
Joanne Elizabeth Parsons University of Warwick, UK

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Jeremy Dale University of Warwick, UK

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John I. MacArtney University of Warwick, UK

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Veronica Nanton University of Warwick, UK

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