We adapt the concept of the ‘consumption ensemble’ to capture the nuanced collaborations between actors in the provision and receipt of home care. Data were from a ten-year study of home care clients, family carers and workers in selected Canadian provinces. Using the lens of the ‘ensemble’, we analysed interviews with 24 dyads (carers and clients) and reviewed findings of our previously published research. Evidence of agency as collective endeavour supporting client autonomy and of improvisation in the ensemble informed a revision of our previous interactive model of care, emphasising the bidirectional nature of care relationships.
Barnhart, M. (2009) Who are you Calling Old? A Study of Old Age Construction and Value Creation in the Elderly Consumption Ensemble, Dissertation, USA: University of Utah.
Barnhart, M. and Peñaloza, L. (2013) Who are you calling old? Negotiating old age identity in the elderly consumption ensemble, Journal of Consumer Research, 39(6): 1133–53. doi: 10.1086/668536
Bennett, P.N., Wang, W., Moore, M. and Nagle, C. (2017) Care partner: a concept analysis, Nursing Outlook, 65(2): 184–94. doi: 10.1016/j.outlook.2016.11.005
Braun, V. and Clarke, V. (2006) Using thematic analysis in psychology, Qualitative Research in Psychology, 3: 77–101. doi: 10.1191/1478088706qp063oa
Byrne, K., Sims-Gould, J., Frazee, K. and Martin-Matthews, A. (2011) ‘I’m satisfied … but’: clients’ and families’ contingent responses about home care, Home Health Care Services Quarterly, 30(4): 161–77. doi: 10.1080/01621424.2011.622242
Byrne, K., Frazee, K., Sims-Gould, J. and Martin-Matthews, A. (2012) Valuing the older person in the context of delivery and receipt of home support client perspectives, Journal of Applied Gerontology, 31(3): 377–401. doi: 10.1177/0733464810387578
Caelli, K., Ray, L. and Mill, J. (2003) ‘Clear as mud’: toward greater clarity in generic qualitative research, International Journal of Qualitative Methods, 2(2): 1–13. doi: 10.1177/160940690300200201
Du Gay, P. (2000) In Praise of Bureaucracy: Weber – Organization – Ethics, Copenhagen: SAGE.
Dunér, A., Bjälkebring, P. and Johansson, B. (2019) Merely a rhetorical promise? Older users’ opportunities for choice and control in Swedish individualised home care services, Ageing and Society, 39(4): 771–94.
Fine, M. and Glendinning, C. (2005) Dependence, independence or inter-dependence? Revisiting the concepts of ‘care’ and ‘dependency’, Ageing and Society, 25(4): 601–21. doi: 10.1017/S0144686X05003600
Gilleard, C. and Higgs, P. (2010) Aging without agency: theorizing the fourth age, Aging & Mental Health, 14(2): 121–8.
Grenier, A. (2012) Transitions and the Lifecourse: Challenging the Constructions of ‘Growing Old’, Bristol and Chicago, IL: Policy Press.
Hautsalo, K., Rantanen, A. and Astedt‐Kurki, P. (2013) Family functioning, health and social support assessed by aged home care clients and their family members, Journal of Clinical Nursing, 22(19–20): 2953–63. doi: 10.1111/j.1365-2702.2012.04335.x
Heggestad, A.K.T. et al. (2015) Dignity, dependence, and relational autonomy for older people living in nursing homes, International Journal of Human Caring, 19(3): 42–6. doi: 10.20467/1091-5710.19.3.42
Hoffer Gittell, J. (2016) Transforming Relationships for High Performance: The Power of Relational Coordination, Stanford, CA: Stanford University Press.
Hoffman, G.J., Webster, N.J. and Bynum, J.P.W. (2020) A framework for aging-friendly services and supports in the age of COVID-19, Journal of Aging & Social Policy, 32(4-5): 450–9.
Horowitz, A., Goodman, C.R. and Reinhardt, J.P. (2004) Congruence between disabled elders and their primary caregivers, The Gerontologist, 44(4): 532–42. doi: 10.1093/geront/44.4.532
Jacobs, G. (2019) Patient autonomy in home care: nurses’ relational practices of responsibility, Nursing Ethics, 26(6): 1638–53. doi: 10.1177/0969733018772070
Janssen, B., Abma, T.A. and Van Regenmortel, T. (2014) Paradoxes in the care of older people in the community: walking a tightrope, Ethics and Social Welfare, 8(1): 39–56. doi: 10.1080/17496535.2013.776092
Johnson, S., Bacsu, J., Abeykoon, H., McIntosh, T., Jeffery, B. and Novik, N. (2018) No place like home: a systematic review of home care for older adults in Canada, Canadian Journal on Aging/La Revue Canadienne du Vieillissement, 37(4): 400–19. doi: 10.1017/S0714980818000375
Kahlke, R.M. (2014) Generic qualitative approaches: pitfalls and benefits of methodological mixology, International Journal of Qualitative Methods, 13(1): 37–52. doi: 10.1177/160940691401300119
Martin-Matthews, A. (2010) Time matters: negotiating daily life and the work day for elderly clients and their home support workers, Generations Review, 20(4): n.d.
Martin-Matthews, A. and Cloutier, D.S. (2017) Household spaces of ageing: when care comes home, in M.W. Skinner, G.J. Andrews and M.P. Cutchin (eds) Geographical Gerontology: Perspectives, Concepts, Approaches, 1st edn, Abingdon, Oxon and New York: Routledge, pp 162–73.
Martin-Matthews, A., Sims-Gould, J. and Tong, C.E. (2012) Canada’s complex and fractionalized home care context: perspectives of workers, elderly clients, family carers, and home care managers, Canadian Review of Social Policy/Revue Canadienne de Politique Sociale, 2(68–9).
Milne, A. and Larkin, M. (2015) Knowledge generation about care-giving in the UK: a critical review of research paradigms, Health & Social Care in the Community, 23(1): 4–13.
Naganathan, G., Kuluski, K., Gill, A., Jaakkimainen, L., Upshur, R. and Wodchis, W.P. (2016) Perceived value of support for older adults coping with multi-morbidity: patient, informal care-giver and family physician perspectives, Ageing & Society, 36(9): 1891–914. doi: 10.1017/S0144686X15000768
Perkins, M.M., Ball, M.M., Whittington, F.J. and Hollingsworth, C. (2012) Relational autonomy in assisted living: a focus on diverse care settings for older adults, Journal of Aging Studies, 26(2): 214–25. doi: 10.1016/j.jaging.2012.01.001
Persson, C., Benzein, E. and Morberg Jämterud, S. (2020) Dignity as an intersubjective phenomenon: experiences of dyads living with serious illness, Qualitative Health Research, 30(13): 1989–2000. doi: 10.1177/1049732320938343
Pirhonen, J. and Pietilä, I. (2018) Active and non-active agents: residents’ agency in assisted living, Ageing & Society, 38(1): 19–36. doi: 10.1017/S0144686X1600074X
Ray, M., Bernard, M. and Phillips, J. (2009) Critical Issues in Social Work with Older People: Reshaping Social Work, Houndmills and New York: Palgrave Macmillan.
Richards, L. (2009) Handling Qualitative Data: A Practical Guide, Thousand Oaks, CA: SAGE Publications.
Ris, I., Schnepp, W. and Imhof, R.M. (2019) An integrative review on family caregivers’ involvement in care of home-dwelling elderly, Health & Social Care in the Community, 27(3): e95–111.
Romaioli, D. and Contarello, A. (2019) Redefining agency in late life: the concept of ‘disponibility’, Ageing & Society, 39(1): 194–216. doi: 10.1017/S0144686X17000897
Samsi, K. and Manthorpe, J. (2013) Everyday decision-making in dementia: findings from a longitudinal interview study of people with dementia and family carers, International Psychogeriatrics, 25(6): 949–61. doi: 10.1017/S1041610213000306
Sebern, M. (2005) Shared care, elder and family member skills used to manage burden, Journal of Advanced Nursing, 52(2): 170–9. doi: 10.1111/j.1365-2648.2005.03580.x
Sebern, M. and Whitlatch, C.J. (2017) Empirical instruments for assessment of care partners, in response to Bennett, P. N., Wang, W., Moore, M., & Nagle, C. (2017). Care partner: a concept analysis, Nursing Outlook, 65(2): 184–94, Nursing Outlook, 65(5): 497–8.
Sims-Gould, J. and Martin-Matthews, A. (2010) We share the care: family caregivers’ experiences of their older relative receiving home support services, Health & Social Care in the Community, 18(4): 415–23.
Sims-Gould, J., Byrne, K., Tong, C. and Martin-Matthews, A. (2015) Home support workers perceptions of family members of their older clients: a qualitative study, BMC Geriatrics, 15(1): 165. doi: 10.1186/s12877-015-0163-4
Thorne, S. (2019) On the evolving world of what constitutes qualitative synthesis, Qualitative Health Research, 29(1): 3–6. doi: 10.1177/1049732318813903
Timulak, L. (2009) Meta-analysis of qualitative studies: a tool for reviewing qualitative research findings in psychotherapy, Psychotherapy Research, 19(4–5): 591–600. doi: 10.1080/10503300802477989
Torgé, C.J. (2014) Freedom and imperative mutual care between older spouses with physical disabilities, Journal of Family Nursing, 20(2): 204–25.
Torrejon, M.J. and Martin-Matthews, A. (2021) Public policy and experiences of aging: social relationships and social integration in Chilean policy on aging, Journal of Aging & Social Policy, 34(1): 38–57.
Truglio‐Londrigan, M. (2013) Shared decision-making in home-care from the nurse’s perspective: sitting at the kitchen table – a qualitative descriptive study, Journal of Clinical Nursing, 22(19–20): 2883–95.
Turjamaa, R., Hartikainen, S. and Pietilä, A.M. (2013) Forgotten resources of older home care clients: focus group study in Finland, Nursing & Health Sciences, 15(3): 333–9.
Weinberg, D.B., Lusenhop, R.W., Gittell, J.H. and Kautz, C.M. (2007) Coordination between formal providers and informal caregivers, Health Care Management Review, 32(2): 140–9. doi: 10.1097/01.HMR.0000267790.24933.4c
|May 2022 onwards||Past Year||Past 30 Days|
|Full Text Views||625||625||11|