‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

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Sally Stapley University of Exeter, UK

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Claire Pentecost University of Exeter, UK

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Rachel Collins University of Exeter, UK

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Catherine Quinn University of Bradford, UK

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Eleanor Dawson University of Exeter, UK

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Jeanette M. Thom University of New South Wales (UNSW), Australia

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Linda Clare University of Exeter and NIHR Applied Research Collaboration South-West Peninsula, UK

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Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study is to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes describe the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.

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Sally Stapley University of Exeter, UK

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Claire Pentecost University of Exeter, UK

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Rachel Collins University of Exeter, UK

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Catherine Quinn University of Bradford, UK

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Eleanor Dawson University of Exeter, UK

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Jeanette M. Thom University of New South Wales (UNSW), Australia

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Linda Clare University of Exeter and NIHR Applied Research Collaboration South-West Peninsula, UK

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