“They have been a saving grace in all this”: the role of the third sector in disabled people’s experiences of COVID-19 and implications for sector–state relations
This article explores the third sector’s role during the COVID-19 pandemic and its impact on the experiences of disabled people in England and Scotland. It draws on semi-structured longitudinal interviews with 71 disabled people and 31 key informants, primarily from disabled people’s organisations. The third sector’s nimble response, supporting people in myriad innovative ways, emerged as a key finding. In contrast, statutory services were experienced by many as a barrier rather than an enabler, posing doubts about the state’s ability to respond to the crisis. Our findings raise questions about the role of the state and the third sector. We employ and critique Young’s typology of sector–state relations, concluding that the state needs to engage with the third sector as an equal and strategic partner, recognising its civil society credentials. Further, we raise questions about the appropriateness of using supply and demand models to understand the third sector’s societal role.
-
Armstrong, S. and Pickering, L. (2020) Left out and Locked Down: Impacts of COVID-19 Lockdown for Marginalised Groups in Scotland, Glasgow: University of Glasgow, https://scotlandinlockdown.files.wordpress.com/2020/12/scotlock_project_report_full_dec2020-2.pdf.
-
Barnes, C. and Mercer, G. (2006) Independent Futures: Creating User-Led Disability Services in a Disabling Society, Bristol: Policy Press.
-
Brandsen, T., Trommel, W. and Verschuere, B. (2014) Manufacturing Civil Society: Practices, Principles and Effects, IIAS Series: Governance and Public Management, Basingstoke: Palgrave Macmillan.
-
Bridge, S., Murtagh, B. and O’Neill, K. (2020) Understanding the Social Economy and the Third Sector, London: Bloomsbury Publishing.
-
Bynner, C., McBride, M. and Weakley S. (2021) COVID-19 pandemic: the essential role of the voluntary sector in emergency response and resilience planning, Voluntary Sector Review (online 16 July 2021).
-
Campbell, J. and Oliver, M. (1996) Disability Politics: Understanding our Past, Changing our Future, London: Routledge.
-
Cote, S. and Healy, T. (2001) The Well-Being of Nations: The Role of Human and Social Capital, Paris: OECD Publishing.
-
Cullingworth, J. (2020) Democratic governance through intermediary bodies: a case study of third sector interfaces in Scotland, doctoral dissertation, University of Glasgow.
-
Dayson, C. and Damm, C. (2020) Re-making state-civil society relationships during the COVID 19 pandemic? An English perspective, People, Place and Policy, 14(3): 282–9.
-
Dayson, C., Bimpson, E., Ellis-Paine, A., Gilbertson, J. and Kara, H. (2021) The ‘resilience’ of community organisations during the COVID-19 pandemic: absorptive, adaptive and transformational capacity during a crisis response, Voluntary Sector Review, 12(2): 295–304. doi: 10.1332/204080521X16190270778389
-
Dickinson, H. and Glasby, J. (2010) The Personalisation Agenda: Implications for the Third Sector, Working Paper 30, Birmingham: Third Sector Research Centre, University of Birmingham.
-
Dickinson, H., Allen, K., Alcock, P., Macmillan, R. and Glasby, J. (2012) The Role of The Third Sector in Delivering Social Care, London: NIHR School for Social Care Research.
-
Dickinson, H., Carey, G. and Kavanagh, A.M. (2020) Personalisation and pandemic: an unforeseen collision course?, Disability & Society, 35(6): 1012–17. doi: 10.1080/09687599.2020.1772201
-
Egdell, V. and Dutton, M. (2017) Third sector independence: relations with the state in an age of austerity, Voluntary Sector Review, 8(1): 25–40. doi: 10.1332/204080516X14739278719772
-
Evers, A. (1995) Part of the welfare mix: the third sector as an intermediate area, Voluntas: International Journal of Voluntary and Nonprofit Organizations, 2: 159–82. doi: 10.1007/BF02353995
-
Freeman, J. (2020) Social care in hospital. Letter, 17 November 2020, https://www.sdsscotland.org.uk/wp-content/uploads/2020/11/Letter-Cabinet-Secretary-Social-Care-in-Hospital-17-11-2020.pdf.
-
Glasgow Disability Alliance (2020) Supercharged: A Human Catastrophe – Inequalities, Participation and Human Rights Before, During and Beyond COVID19, Glasgow: Glasgow Disability Alliance.
-
Guest, G., MacQueen, K. and Namey, E. (2012) Applied Thematic Analysis, London: Sage.
-
Harris, M. (2021) Familiar patterns and new initiatives: UK civil society and government initial responses to the Covid-19 crisis, Nonprofit Policy Forum, 12(1): 25–44. doi: 10.1515/npf-2020-0044
-
Hilton, M., Crowson, N., Mouhot, J.F. and McKay, J. (2012) A Historical Guide to NGOs in Britain. Charities, Civil Society and the Voluntary Sector, Basingstoke: Palgrave Macmillan.
-
Inclusion London (2020) Abandoned, Forgotten, Ignored: The Impact of The Coronavirus Pandemic On Disabled People: Interim Report, London: Inclusion London, https://www.inclusionlondon.org.uk/wp-content/uploads/2020/06/Abandoned-Forgotten-and-Ignored-Final-1.pdf.
-
Kelly, J. (2007) Reforming public services in the UK: bringing in the third sector, Public Administration, 85(4): 1003–22. doi: 10.1111/j.1467-9299.2007.00680.x
-
Kövér, A. (2021) The relationship between government and civil society in the era of COVID-19, Nonprofit Policy Forum, 12(1): 1–24.
-
Lewis, J. (1999) Reviewing the relationship between the voluntary sector and the state in Britain in the 1990s, Voluntas, 10(3): 255–70. doi: 10.1023/A:1021257001466
-
Macmillan, R. (2020) Somewhere over the rainbow – third sector research in and beyond coronavirus, Voluntary Sector Review, 11(2): 129–36. doi: 10.1332/204080520X15898833964384
-
Mason, J. (2002) Qualitative Researching, 2nd edn, London: Sage Publications.
-
McMullin, C. (2021) Migrant integration services and coping with the digital divide: challenges and opportunities of the COVID-19 pandemic, Voluntary Sector Review, 12(1): 129–36. doi: 10.1332/204080520X16076177287917
-
Milbourne, L. (2013) Voluntary Sector in Transition: Hard Times or New Opportunities?, Bristol: Policy Press.
-
Milbourne, L. and Murray, U. (2017) Civil Society Organisations in Turbulent Times: A Gilded Web?, London: UCL Institute of Education Press.
-
ONS (Office for National Statistics) (2019) Exploring the UK’s Digital Divide, London: ONS, https://www.ons.gov.uk/peoplepopulationandcommunity/householdcharacteristics/homeinternetandsocialmediausage/articles/exploringtheuksdigitaldivide/2019-03-04#:~:text=For%20internet%20non-users%20aged,aged%2075%20years%20and%20older.
-
ONS (Office for National Statistics) (2020) Coronavirus (COVID-19) Related Deaths by Disability Status, England and Wales: 2 March to 15 May 2020, London: ONS, https://www.ons.gov.uk/peoplepopulationandcommunity/birthsdeathsandmarriages/deaths/articles/coronaviruscovid19relateddeathsbydisabilitystatusenglandandwales/2marchto14july2020.
-
Pearson, C., Watson, N., Brunner, R., Cullingworth, J., Hameed, S., Scherer, N. and Shakespeare, T. (2022) COVID-19 and the crisis in social care: exploring the experiences of disabled people in the pandemic, Social Policy and Society: 1–16. doi: 10.1017/S1474746422000112
-
Pestoff, V. (2018) Co-production at the crossroads of public administration regimes, in T. Brandsen, T. Steen and B. Verschuere (eds) Co-Production and Co-Creation: Engaging Citizens in Public Services, London: Routledge, pp 27–36.
-
ProBono Economics (2021) PBE Charity Tracker, London: ProBono Economics in partnership with Charity Finance Group and the Chartered Institute of Fundraising, https://www.probonoeconomics.com/quarterly-covid-charity-tracker-survey-results-april-2021.
-
Public Health England (2020) Deaths Of People Identified as Having Learning Disabilities with COVID-19 in England in the Spring of 2020, London: Public Health England, https://www.gov.uk/government/publications/covid-19-deaths-of-people-with-learning-disabilities.
-
Putnam, R. (2000) Bowling Alone, New York, NY: Simon & Schuster.
-
Rendall, J., Curtin, M., Roy, M. J, and Teasdale, S. (2022) Relationships between community-led mutual aid groups and the state during the COVID-19 pandemic: complementary, supplementary, or adversarial? Public Management Review, 1–21. doi: 10.1080/14719037.2022.2084769.
-
Rittel, H.W.J. and Webber, J. (1973) Dilemmas in a general theory of planning, Policy Sciences, 4(2): 155–69. doi: 10.1007/BF01405730
-
Scherer, N., Wiseman, P., Watson, N., Brunner, R., Cullingworth, J., Hameed, S., Pearson, C. and Shakespeare, T. (2022) ‘Do they ever think about people like us?’: the experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic, Critical Social Policy, 1–25.
-
Scottish Renewal Advisory Board (2021) If Not Now, When? The Scottish Renewal Advisory Board Report, Edinburgh: Scottish Government, https://www.gov.scot/publications/not-now-social-renewal-advisory-board-report-january-2021/documents/.
-
SCVO (Scottish Council for Voluntary Organisations) (2020) Coronavirus and the Impact on the Third Sector: A Review of the Literature, Edinburgh: SCVO, https://scvo.scot/policy/research/evidence-library/2021-coronavirus-and-its-impact-on-the-scottish-third-sector-a-review-of-the-literature-september-december-2020.
-
Shakespeare, T., Ndagire, F. and Seketi, Q.E. (2021) Triple jeopardy: disabled people and the COVID-19 pandemic, The Lancet, 397(10282): 1331–3. doi: 10.1016/S0140-6736(21)00625-5
-
Shakespeare, T., Watson, N., Brunner, R., Cullingworth, J., Hameed, S., Scherer, N., Pearson, C. and Reichenberger, V. (2022) Disabled people in Britain and the impact of the COVID-19 pandemic, Social Policy & Administration, 56(1): 103–17.
-
Smith, S.R. and Gronbjerg, K.A. (2006) Scope and theory of government-nonprofit relations, in G. Sonnevi (ed) The Nonprofit Sector: A Research Handbook, 2nd edn, New Haven, CT: Yale University Press.
-
Thiery, H., Cook, J., Burchell, J., Ballantyne, E., Walkley, F. and McNeill, J. (2021) ‘Never more needed’ yet never more stretched: reflections on the role of the voluntary sector during the COVID-19 pandemic, Voluntary Sector Review, 12(3): 459–65. doi: 10.1332/204080521X16131303365691
-
Treanor, M.C., Patrick, R. and Wenham, A. (2021) Qualitative longitudinal research: from monochrome to technicolour, Social Policy and Society, 20(4): 635–51. doi: 10.1017/S1474746421000270
-
Wolch, J. (1989) The shadow state: transformations in the voluntary sector, in J. Wolch and M. Dear (eds) The Power of Geography: How Territory Shapes Social Life, Republished 2014, Abingdon: Routledge, pp 197–221.
-
Young, D. (2000) Alternative models of government-nonprofit sector relations: theoretical and international perspectives, Nonprofit and Voluntary Sector Quarterly, 29(1): 149–72. doi: 10.1177/0899764000291009
-
Young, D. (2006) Complementary, supplementary or adversarial? A theoretical and historical examination of nonprofit-government relations in US, in E. Boris and C. Steuerle (eds) Nonprofits & Government: Collaboration & Conflict, 1st edn, Washington, DC: Urban Institute Press, pp 31–67.
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