The study explored how family care is developed and maintained in families in cases where more than one family member is involved in care. A total of 43 family carers in Austria participated in this qualitative study. Family care is a process of ongoing communication, in which responsibilities, coordination and conditions are negotiated among the family members involved. Three distinct care network types emerged from the data, which differ in terms of the individual perception of roles and responsibilities, and the distribution of care. Responsibilities for one another, awareness of being a family carer and the availability of resources are preconditions for the composition of these networks.
The literature on later-life care is dominated by a focus on women as carers and older people as receivers, not providers, of care, as well as the analytical disembedding of care from wider social and economic processes. We examine the experiences of care and caring of former labour migrants who had migrated from Lesotho to work in South Africa’s mines in order to examine how these have changed over their lives. The latter demanded the tying of experience into wider social, economic and demographic processes. The research identified a methodological issue in the study of later-life care: survivor bias.
In a fraught fiscal and post-pandemic context, English adult social care is likely to see further care home closures. To make sure that closures minimise distress and potentially negative outcomes for residents, this article reports findings from an analytical narrative review of the existing research evidence about the process and outcome of such closures in the UK. Despite the importance of these issues, there is little underpinning research to draw on when establishing good practice, with particular gaps in terms of understanding outcomes for older people, the experience of care staff, economic evidence and the perspectives of social care leaders.
This study examines whether care workers in Finland feel able to provide adequate care for older people and analyses the working conditions that limit them from providing it. One third of the respondents felt that they were not able to provide sufficient care for older people. This was seen as being due to excessive workloads, a general lack of staff and accompanying physical and mental burdens. Improving care workers’ working conditions would enhance their work–life balance and allow them to help older people avoid situations of care poverty, that is, to receive the level of care they deserve.
Indications of a care deficit for older adults in Africa and the need for long-term care that is acceptable for recipients and providers is well established, as are calls for its format to be ‘home-grown’. However, there is a discrepancy between the desire for evidenced African solutions, and the framing of both the problem and possible solutions derived from the Global North. This article draws on qualitative data from men and women needing and providing care in rural southern Malawi to challenge the implied universalism of the key terms of reference in the African long-term care discourse: ‘care’ and ‘family’.
In this article, we present a scoping review of the evidence and discussions in the extant literature on long-term care for older people in Southern Africa, focusing particularly on patterns of knowledge production in the region. Findings indicate that while the number of publications has increased over recent years, empirical research in countries outside of South Africa is extremely sparse and underfunded, and there is no clear research agenda. Drawing on a political ethics of care perspective, we reflect on the lack of attention to issues of care and the positioning of care for older people within societies in the region.
This article expands understanding of the experiences of working carers by analysing their care activities and applying cognitive appraisal theory to explore how different resources affect carers’ appraisal processes. A total of 18 carers from the UK and Hong Kong took part in a qualitative daily diary study. The contributions of the article include providing a broader conceptualisation of care activities and considering the implications of cognitive appraisals and resources in the experience of combining work and care. The findings provide insights into future research design and support development.
Patient and public involvement is a way of ensuring that research and practices are more responsive to their target groups. This study, inspired by discourse psychology, explores the knowledge contributions of informal carers who participated in group meetings to co-create a support intervention. Findings highlight that carers’ knowledge is complex, including more than practical caring experiences. Acknowledging carers’ knowledge contributions and involving a heterogeneous sample of carers are key considerations for patient and public involvement in research; otherwise, there is a danger of establishing risks of injustice. Accepting the multifaceted knowledge of carers could increase the validity of research and the relevance of interventions developed.
Physical activity is beneficial for overall health; however, informal carers may have lower levels of physical activity than non-carers. The primary aim of this systematic review was to identify barriers and facilitators to physical activity from the perspective of carers internationally, excluding the UK. The study found that barriers to physical activity include lack of time, fatigue, lack of motivation and lack of support. Facilitators of physical activity include health and well-being as a motivator, using physical activity as a coping mechanism, and social support. Participating with the care recipient and care duties were both barriers and facilitators depending on the study or participant.
