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In this article, we present a scoping review of the evidence and discussions in the extant literature on long-term care for older people in Southern Africa, focusing particularly on patterns of knowledge production in the region. Findings indicate that while the number of publications has increased over recent years, empirical research in countries outside of South Africa is extremely sparse and underfunded, and there is no clear research agenda. Drawing on a political ethics of care perspective, we reflect on the lack of attention to issues of care and the positioning of care for older people within societies in the region.
The literature on later-life care is dominated by a focus on women as carers and older people as receivers, not providers, of care, as well as the analytical disembedding of care from wider social and economic processes. We examine the experiences of care and caring of former labour migrants who had migrated from Lesotho to work in South Africa’s mines in order to examine how these have changed over their lives. The latter demanded the tying of experience into wider social, economic and demographic processes. The research identified a methodological issue in the study of later-life care: survivor bias.
The study explored how family care is developed and maintained in families in cases where more than one family member is involved in care. A total of 43 family carers in Austria participated in this qualitative study. Family care is a process of ongoing communication, in which responsibilities, coordination and conditions are negotiated among the family members involved. Three distinct care network types emerged from the data, which differ in terms of the individual perception of roles and responsibilities, and the distribution of care. Responsibilities for one another, awareness of being a family carer and the availability of resources are preconditions for the composition of these networks.
Innovation alters who is accountable for social care and how they are held to account. This article shows how organisational, institutional and technological innovation in infrastructures of social care can reconfigure accountability instruments and propel change between distinct modes of accountability. However, innovation also sustains neglect, both in terms of issues, objects and subjects missing from research, and in terms of low levels of institutional reflexivity mobilised to evaluate and direct innovation’s impacts. Evidenced using two-level situational analysis – across a UK research portfolio and within a public robotics lab – we argue that confronting this neglect is critical for post-pandemic reform.
There is international evidence that informal or unpaid carers have poorer mental health and experience higher levels of isolation and stress than others in the population. Identifying approaches that promote carer well-being is critical to supporting this essential role in the community. This study presents the findings of the evaluation of a brief carer intervention designed to improve carers’ well-being delivered by a community service organisation. The manualised programme provided information and psycho-education to adult carers in five regional locations in Victoria, Australia. Positive change was noted in carers’ knowledge of good mental health and well-being, supports, and social connectedness.
The personalisation of residential care services is based on three broad principles of valuing personal identity, empowering resident decision-making and fostering care relationships. We analysed 50 Care Quality Commission care home inspection reports to identify factors that the reports indicate facilitate or hinder the delivery of personalised residential care in England. Findings suggest that the provision of personalised services is affected by staff skills, attitudes and availability, as well as the quality of care home leadership. Future care policy should consider addressing external pressures facing the care home sector, including inadequate funding and too few staff, to mitigate barriers to delivering high-quality, personalised care.
This article focuses on the ethical caring practices of general practitioners in dealing with intimate partner violence. In-depth interviews were conducted with general practitioners to inquire about their concrete experiences and conflicts, which were then submitted to a thematic analysis based on Tronto’s elements of an ethics of care. The results show the difficulties faced by general practitioners when it comes to clarifying their patients’ caring needs, determining what is meant by competent care and dealing with the conflicting expectations of the caregiver and care receiver particular to the issue of intimate partner violence.
Research on the impact of caring for patients with an acoustic neuroma is scarce. Findings from 12 interviews with primary carers of this patient population highlight six key themes: life disruption, support, well-being, the carer role, lessons learned and the impact of COVID-19. Carers need more practical information and emotional support, starting from the diagnosis stage through to recovery. Recommendations include routine carer assessments, early signposting to auxiliary services and information materials about recovery. This study contributes to the UK literature gap of this under-studied population and demonstrates the importance of carer assessments, as set out in the Carers Act 2014.
We adapt the concept of the ‘consumption ensemble’ to capture the nuanced collaborations between actors in the provision and receipt of home care. Data were from a ten-year study of home care clients, family carers and workers in selected Canadian provinces. Using the lens of the ‘ensemble’, we analysed interviews with 24 dyads (carers and clients) and reviewed findings of our previously published research. Evidence of agency as collective endeavour supporting client autonomy and of improvisation in the ensemble informed a revision of our previous interactive model of care, emphasising the bidirectional nature of care relationships.
The article elaborates what aspects of knowledge eldercare workers describe concerning everyday long-term care practices. The article utilises a thematic analysis of Finnish long-term care workers’ semi-structured interviews (n = 25), and in doing so, it contributes to the discussion concerning the epistemological basis of care. The analysis specifies four aspects of knowledge in long-term care work: objective/objectifying, particular, corporeal and tacit. In line with existing literature on knowledge and care, the findings indicate that rational-technical epistemological approaches are insufficient when complex and fluid care relations are concerned. Moreover, cognitive impairments and other particularities of eldercare provide previously under-researched epistemological perspectives for consideration.
