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This study sets out to identify and describe informal care trajectories over the lifecourse in the Netherlands, and evaluate theoretical ideas on informal care trajectories. We conduct latent profile analysis on a sample of 949 respondents who retrospectively reported on all informal care episodes they had ever experienced, based on the number of episodes, age at first caring episode, duration and overlap. We identified four informal care trajectories – the one-time partner, mid-aged parental, serial and lifelong care trajectories – and assessed their differences in felt obligation, intensity and task complexity. The theoretical ideas of Keating and colleagues find support in our empirical evidence.
Despite widespread acknowledgement of challenges endured by unpaid caregivers, there is still a paucity of studies attempting to elucidate factors that necessitate resilience in caregiving. This integrative review aimed to identify facilitators and barriers to unpaid caregivers’ resilience. Four databases (Medline, PsycINFO, Cumulative Index of Nursing and Allied Health Literature [CINAHL] and Scopus) were searched for English-language articles (January 2000–August 2021) that considered facilitators and barriers to caregiving resilience among the carer population. A total of 22 articles were identified. Facilitators included carers receiving adequate social support and personal time, and remaining positive; barriers included lack of social support, adopting a negative outlook, experiencing family conflict and financial instability.
A total of 60 young adults responded to vignettes presenting moral dilemmas experienced in caregiving interactions with a family member with dementia. Four types of reasons for deceiving (or not deceiving) a family member with dementia emerged: care reasons (improving the welfare of the person with dementia), justice reasons (universal principles), care-for-others reasons (protecting the welfare of others), and relationship reasons (maintaining the relationship). Care reasons and care-for-others reasons positively predicted moral decisions to lie, whereas justice reasons and relationship reasons negatively predicted these decisions. These findings underscore the importance of understanding the motives underlying deception in dementia relationships.
This article examines carers’ potential to care for older adults with disabilities in Trinidad. Quantitative data on willingness, availability and skills, together with qualitative data on factors affecting care potential, were collected from a large, nationally representative sample of Trinidadians. About 68 per cent of Trinidadians were willing to care for older relatives with disabilities, 42 per cent were available and 31 per cent perceived having the required skills. Factors affecting care potential include personal views, potential of social network, competency and constraints. Integrated results indicate the importance of evaluating existing governmental programmes, targeted support for various ethnic groups and to older carers, and skills training.
The closure of day centres during the COVID-19 pandemic placed these, generally under-researched, services of day centres under the spotlight. We report priority areas for support and research concerning English adult and older people’s day centres identified by a 2021 survey. Day centres and other day centre stakeholders have an appetite for evidence and supportive resource materials, covering how to remain current and sustainable, demonstrate impact, and support the workforce. An underlying focus on day centres for older people and people living with dementia suggested that centres catering for these groups experienced the most difficulty in providing appealing evidence to service funders.
In response to the dominant narrative that informal care episodes become increasingly heavy over time, this study empirically identifies distinct informal care trajectories in terms of developments in care demands (care receivers’ health), intensity (number of hours) and complexity (number and type of tasks) over the course of a care episode. Latent class analysis on 5,595 informal care episodes among 2,884 Dutch carers identified a ‘stable trajectory’ (41 per cent) and ‘decrease trajectory’ (22 per cent) apart from an ‘increase trajectory’ (37 per cent). The trajectories were related to care receivers’ characteristics (age), carers’ difficulty of saying ‘no’ (relationship and obligation) and changes in the care context (living situation).
Family carers have high rates of stress, anxiety and depression, but there are also positive aspects of caregiving. The aim of this study is to explore correlates of caregiving competence, a positive aspect of caregiving, in 146 female family carers. Regression analyses identify that self-efficacy for controlling upsetting thoughts, caregiver preparedness and self-reassurance were significantly related to caregiving competence, after controlling for contextual variables. These findings indicate that mental health practitioners working with family carers should target positive psychosocial mechanisms, along with factors directly related to the caregiving situation, to enhance carer well-being and promote sustainable care.
This study examines whether care workers in Finland feel able to provide adequate care for older people and analyses the working conditions that limit them from providing it. One third of the respondents felt that they were not able to provide sufficient care for older people. This was seen as being due to excessive workloads, a general lack of staff and accompanying physical and mental burdens. Improving care workers’ working conditions would enhance their work–life balance and allow them to help older people avoid situations of care poverty, that is, to receive the level of care they deserve.
Eldercare arrangements are intricately woven and complex. While adult children are socially extolled as legitimate caregivers, ayahs working in ayah centres are making revolutionary strides in Kolkata. Drawing across this context, the article explores multiple essences of lived experiences through which care actors like ayahs, elderly care receivers, their kin and ayah-centre managers produce and reproduce ‘care practices’. These establish ayahs and ayah centres as a social resource for the elderly, enabling them to reflect on their mundane ageing and ‘personhood’ in Kolkata.
Caregiving for persons with severe mental health disorders is associated with higher stress levels and a lower quality of life. As rates of mental health disorders increase worldwide, the need for assisting familial caregivers with strategies to reduce stress is paramount. The present study examines the relationships between empathy (cognitive and affective), emotional intelligence and stress in these caregivers. A parallel mediation model demonstrates that cognitive empathy, in particular, partially mediated the negative relationship between emotional intelligence and stress, indicating the importance of cognitive empathy in caregiving. The results of this study can help design targeted interventions to reduce caregiver stress.