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Care is activist when acts of care produce acts of citizenship: acts of breaking the dominant models of being responsible. This article has the theoretical objective of parsing how some acts of care become activist because they subvert the dominant norms of involvement and produce new ways of being mutually linked. They break established habits and social habitus, and they require new ways of acting and responding. This is what allows us to reinterpret care as a subversive practice, reshaping the political, affective and ethical boundaries. This can generate the condemnation and criminalisation of care in response.

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This study represents the experiences of informal carers of people with dementia concerning periods of transition into formal care. Retrospective interviews with 18 carers identified the key narratives: ‘This is why I had to’, ‘They said I need to’ and ‘It was a last resort’. These indicate a sense of carers’ responsibility in decision making and the undesirable assumptions around the move. However, the narrative of ‘I made the right decision’ was common after transition. Findings represent the nuanced carer experience around transitions, providing insight into the experiences of families living with dementia and informing future care planning.

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Using a propensity score matching approach, this study evaluates the effect of caring on the physical health, mental health and subjective well-being of Chilean older people. The average treatment effect was not significant in any of the outcomes to physical health. However, older carers – and those who care intensely – were more likely to have depressive and anxious symptomatology and lower life satisfaction than older non-carers. Interventions should consider strategies that favour mental health and avoid caregiver burden, considering the interaction between caring and the challenges of ageing. This could improve the quality of life of carers and those being cared for.

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We explored carers’ experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies from carers participating in a British longitudinal cohort study. Semi-structured interview data were compared to accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles, but without appropriate support, carers risked reaching crisis point. Evidence points to a requirement for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.

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While welfare states and work organisations often provide policies to facilitate a reconciliation of paid work and informal care, the literature pays little attention to employees’ actual capabilities to engage with such policies. In this article, we apply the capabilities approach to interview data from managers and employees in the Netherlands to understand employees’ use or non-use of the policies. We found that job flexibility may help workers reconcile work and care in the short run but that respondents with greater job flexibility reported more health problems than respondents with less flexibility, which calls into question the sustainability of these policies.

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Many family carers of older people living with dementia report reduced quality of life, but limited research has investigated what they believe could improve it. Our thematic analysis of in-depth interviews with 23 family carers questions the standardisation of carer support and the appropriateness of the current scope of services, and suggests strengthening carers’ independent right to support. We propose the notion of a ‘care–life balance’, which also draws attention to the different logics inherent in informal and formal care that future service development should seek to reconcile to better support families affected by dementia.

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