Search Results

You are looking at 1 - 10 of 81 items for

  • Author or Editor: Marian Barnes x
Clear All Modify Search
Author:

English

This article discusses the rules of the game in participatory democracy and the engagement of disabled people and mental health service users/survivors in the process. Drawing on theories of new social movements and of deliberative democracy, the article considers how notions of ‘legitimate participants’ are constructed within official discourse, and how those can be challenged by autonomous groups of disabled people. It also explores assumptions about appropriate forms of deliberation within participation forums and how an appeal to rational debate can exclude the emotional content of the experience of living with mental health problems from deliberation about mental health policy. The argument is illustrated by reference to research conducted by the author, and by a Canadian study of user/survivor involvement in policy making.

Restricted access
Author:

Feminist care ethics emphasises the relational nature of care. This suggests the importance of understanding the different dynamics of care in different relational contexts. This article applies such a perspective to exploratory interviews with carers looking after siblings in older age. While some attention has been given to sibling care following the death of parents of people with learning difficulties and, to a lesser extent, those with enduring mental health problems, older sibling care can take place when siblings become ill, or when they have had close contact over a lifetime. Motivations to care are strongly embedded in family responsibility, but the precise meaning and consequences of this vary. Such relationships may not be more egalitarian than other familial caring relationships, although caregiving can bring siblings closer together.

Restricted access
Author:

This paper argues that public service evaluation should be considered a value-driven activity which has the objective of contributing to change. Researchers undertaking this type of work have legitimate interests to pursue through it and should be regarded as stakeholders in their own right. Reflecting a commitment to changing the balance of power between those who provide and those who receive services, the interests of service users as stakeholders should be enhanced through the research process. This requires a different type of relationship between the researcher and research ‘subjects’. An attempt to put these principles in practice in the context of the evaluation of a major initiative to enable users to have their say in the development of community care services is described.

Restricted access
Author:

This chapter examines a number of reasons for disputing the adequacy of a consumerist frame of reference for understanding the challenge presented to health and social care services by user and carer movements. Not only is the consumer as chooser an inadequate conceptualisation of the relationship between users and producers of welfare services, it is also a flawed strategy for empowerment and does not express the broad significance of the collective action that has developed over the last 40 years among users of welfare services. Collectively, service users have developed alternative ways of understanding disability, mental illness, and caregiving; have claimed the right to construct their own identities; and have unsettled taken-for-granted assumptions about social relations not only between providers and users of welfare services at the point of delivery, but also in the process of deliberation about social policies.

Restricted access
Author:

This chapter deals with the potential of participative spaces in which alliances may be built and the ‘citizen-official’ binary may be undermined. It addresses the way in which participatory forums can enable the construction and reconstruction of individual and collective identities of both citizens and officials, and thus hold the potential for undermining or subverting assumptions about both identity and expertise. The chapter examines the notions of expertise and of ‘responsible citizens’ in this context, and offers a perspective on the exercise of power and agency within forums that are increasingly seen to be central to the delivery of public policy objectives in the UK.

Restricted access
Author:

The ethics of care offers a broad understanding of care as a ‘species activity’ that encompasses diverse contexts and relationships. This means needing to look beyond one to one relationships that clearly distinguish care givers from care receivers to understand the diversity of what care means in practice, and what the ethical implications are. This chapter considers how to conceptualise diverse caring relationships, including ‘collective care’ that involves networks or groups of individuals. It also reviews ways in which the ethics of care helps us think about issues of presence/distance and of degrees of intimacy within caring relationships. Finally, it considers the significance of time: past, present and future, in relation to care both in personal contexts where past relationships and future aspirations and fears affect care, but also political perspectives on collective responsibilities for past wrongs and future needs.

Restricted access
Author:

Old age is an identity that many resists. It contributes to a sense of invisibility and, for some, it leaves them out of both time and place in the world. This chapter reviews examples of older people’s participation from England, Scotland, the Netherlands, Australia and Ireland. As well as ‘ageing activism’ within seniors’ forums and interest organisations, it explores participation in contexts not often regarded as ‘political’, such as within residential homes and in research projects. Such contexts can reflect the most immediate points of contact between older people and state services and policies that impact their lives. They can be a focus for transforming practices and ways in which public officials and service providers think about old age and old people. It is argued that ‘deliberating with care’ with older people not only offers transformative potential in relation to specific services and policies than can benefit us all as we grow older, but it can also counteract damaging inter-generational conflict, and enhance wellbeing and social justice.

Restricted access
An ethic of care in practice
Author:

Care has been struggled for, resisted and celebrated. The failure to care in ‘care services’ has been seen as a human rights problem and evidence of malaise in contemporary society. But care has also been implicated in the oppression of disabled people and demoted in favour of choice in health and social care services.

In this bold wide ranging book Marian Barnes argues for care as an essential value in private lives and public policies. She considers the importance of care to well-being and social justice and applies insights from feminist care ethics to care work, and care within personal relationships. She also looks at ‘stranger relationships’, how we relate to the places in which we live, and the way in which public deliberation about social policy takes place. This book will be vital reading for all those wanting to apply relational understandings of humanity to social policy and practice.

Restricted access
Author:

In the final chapter the concept of care is revisited to reflect on what applying care ethics to different everyday contexts contributes to our understanding of care. The author suggests the principle of ‘responsiveness’ can be developed though a contextualised understanding of the significance of reciprocity, and also emphasises the epistemological dimension of care. She considers care as a focus and resource for different forms of struggle and highlights the importance of care thinking within different types of political space, including both user and carer movements. The chapter concludes by emphasising the necessity of care in diverse policy contexts and the danger of ‘abandoning’ care from policy and practice discourse.

Restricted access
Author:

This introduces care as a way of conceptualising relationships, as a set of values and as a practice. It notes the way in which care has been resisted, and the need to recognise ‘poor care’ and its impact. It summarises the book structure.

Restricted access