In response to the need for improved access to dementia services for minority ethnic communities, the Alzheimer’s Society piloted, in 2014, the Information Programme for South Asian Families (IPSAF), an adapted version of its existing course for carers. It delivered this in partnership with local black and minority ethnic community and faith organisations, a new approach for the Alzheimer’s Society. In most cases, the partnerships formed were strong and effective, and have given rise to ongoing plans for joint working that bring benefits to both the local organisations and the Alzheimer’s Society. However, the current realities of UK voluntary and community sector dynamics raise questions of ownership and issues around how to establish genuine partnerships. In this article, we reflect on what the IPSAF experience indicates about the potential for equitable partnerships between small and large organisations, and draw out lessons for building effective, mutually beneficial relationships.
People living with dementia can experience a range of behaviours that can be described as distressed. As most research on distressed reactions has been carried out in care homes, this study explores how family carers of people living with dementia make sense of distressed reactions in home settings, as well as the strategies they have used to manage them. In-depth interviews were conducted with nine carers. The following themes were explored: understandings of distressed reactions; the perceived causes of distressed reactions; and the consequences and management of distressed reactions. Recommendations indicate the specific support that carers require to help them provide appropriate care.