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This is the first book to address the issue of ageing after a long life with disability. It breaks new ground through its particular life course perspective, examining what it means to age with a physical or mental disability and what the implications are of ‘becoming old’ for people who have had extensive disabilities for many years. These people may have had to leave the labour market early, and the book looks at available care resources, both formal and informal. Ageing with disability challenges set ideas about successful ageing, as well as some of those about disabilities. The life course approach that is used unfolds important insights about the impact of multiple disabilities over time and on the phases of life. The book highlights the meaning of care in unexplored contexts, such as where ageing parents are caregivers or regarding mutual care in disabled couples. These are areas of knowledge which have, to date, been totally neglected.
that while national differences in supports to carers exist, generally, the supports available are often fragmented and inadequate. Supporting carers becomes even more urgent in the context of COVID-19. Supports normally available in the community (such as various forms of respite care for carers) may suddenly become unavailable. Older adults with serious illnesses or disabilities who normally reside in congregate settings such as long-term care (LTC) homes may need to reside with family members temporarily due to outbreaks in LTC homes. As we prepare for the
35 THREE disability, identity and ageing Lotta Holme ‘In contrast to previous living conditions, we now gain access to normal ageing.’ (oscar, 62 years old) introduction In this chapter I explore from a lifecourse perspective how important leading activists of the modern Swedish disability movement regard their ageing and later life. More specifically, I focus on how a special group of disabled people experience ageing and later life in light of the modern history of disability and disability politics in which they have actively participated (see also
SeVen Ageing, disability and participation Janet Fast and Jenny de Jong Gierveld Meaningful participation and social integration in society have been shown to contribute to ageing well. Both cross-sectional and longitudinal research have linked social participation to positive outcomes including quality of life (Silverstein and Parker, 2002), emotional well-being (Lee and Russell, 2003), functional independence (Unger et al, 1997) and lower morbidity and mortality rates (Menec, 2003). Importantly, social participation is seen to lead to social embededdness
1 oNE Ageing with disability: An introduction Eva Jeppsson Grassman and Anna Whitaker background The risk of acquiring impairments of various kinds increases as we grow older. Such old age-related impairments are not the ones at issue in this book, however. Instead, the focus is on people who have acquired impairments or chronic illness earlier in life, perhaps during childhood, adolescence or young adulthood, and who have had better chances than those in previous generations to live long lives. The aim of the book is to discuss – from a lifecourse
give or receive care ( Knijn and Kremer, 1997 ). At the heart of this exclusion is the value (or lack thereof) placed upon care and its association with the private domain. Tronto (1993) suggests that the inability to think of care outside of privatised and gendered terms is not a failure of care, but a constraint in the social contexts in which caring practices occur in society. Exclusionary practices particularly affect women with disabilities, whose parental rights are not always recognised. For many mothers with disabilities, especially those with intellectual
TWo Crossing borders: lifecourse, rural ageing and disability Tamara Daly and Gordon Grant Introduction This chapter introduces lifecourse perspectives that contribute to our understandings of ageing and disability in rural places; highlights what key assumptions about ageing, disability and rural places might fruitfully inform current thinking about the lifecourse; and raises questions for further research. As is evident from the preceding chapter, rural communities are defined in terms of locality and social representation, implying considerable
273 International Journal of Care and Caring • vol 2 • no 2 • 273–77 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15224823740266 debates and issues THEMED ISSUE • Variations and innovations in care and care work: Critical perspectives User-controlled personal assistance – the case of persons with intellectual disabilities Anne-Britt Horn Hanssen, abhh@oliviaassistanse.no Head of Olivia Assistance, Norway Sidsel Maxwell Grasli, smg@oliviaassistanse.no Senior Advisor, Olivia Assistance, Norway key words
587 International Journal of Care and Caring • vol 2 • no 4 • 587–93 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15411706368334 debates and issues Underpricing care: a case study of Australia’s National Disability Insurance Scheme Natasha Cortis, n.cortis@unsw.edu.au University of New South Wales, Australia Fiona Macdonald, Fiona.macdonald@rmit.edu.au RMIT University, Australia Bob Davidson, bob.davidson@mq.edu.au Macquarie University, Australia Eleanor Bentham, eleanor.bentham@rmit.edu.au RMIT
Introduction Older adults living with disabilities in Canada often require assistance from a relative or friend (that is, a family carer) ( Kokorelias et al, 2020 ). Based on 2012 estimates, 13.7 per cent of the Canadian population (4.8 million Canadians) lived with disabilities ( Statistics Canada, 2013 ) and 28 per cent of the population (9.7 million Canadians) aged 15 and above provided unpaid care to a family member, friend or neighbour ( Fast, 2015 ). While 74 per cent of carers spent under ten hours per week on care, 10 per cent of them provided unpaid
