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that while national differences in supports to carers exist, generally, the supports available are often fragmented and inadequate. Supporting carers becomes even more urgent in the context of COVID-19. Supports normally available in the community (such as various forms of respite care for carers) may suddenly become unavailable. Older adults with serious illnesses or disabilities who normally reside in congregate settings such as long-term care (LTC) homes may need to reside with family members temporarily due to outbreaks in LTC homes. As we prepare for the

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give or receive care ( Knijn and Kremer, 1997 ). At the heart of this exclusion is the value (or lack thereof) placed upon care and its association with the private domain. Tronto (1993) suggests that the inability to think of care outside of privatised and gendered terms is not a failure of care, but a constraint in the social contexts in which caring practices occur in society. Exclusionary practices particularly affect women with disabilities, whose parental rights are not always recognised. For many mothers with disabilities, especially those with intellectual

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273 International Journal of Care and Caring • vol 2 • no 2 • 273–77 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15224823740266 debates and issues THEMED ISSUE • Variations and innovations in care and care work: Critical perspectives User-controlled personal assistance – the case of persons with intellectual disabilities Anne-Britt Horn Hanssen, abhh@oliviaassistanse.no Head of Olivia Assistance, Norway Sidsel Maxwell Grasli, smg@oliviaassistanse.no Senior Advisor, Olivia Assistance, Norway key words

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587 International Journal of Care and Caring • vol 2 • no 4 • 587–93 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15411706368334 debates and issues Underpricing care: a case study of Australia’s National Disability Insurance Scheme Natasha Cortis, n.cortis@unsw.edu.au University of New South Wales, Australia Fiona Macdonald, Fiona.macdonald@rmit.edu.au RMIT University, Australia Bob Davidson, bob.davidson@mq.edu.au Macquarie University, Australia Eleanor Bentham, eleanor.bentham@rmit.edu.au RMIT

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Introduction Older adults living with disabilities in Canada often require assistance from a relative or friend (that is, a family carer) ( Kokorelias et al, 2020 ). Based on 2012 estimates, 13.7 per cent of the Canadian population (4.8 million Canadians) lived with disabilities ( Statistics Canada, 2013 ) and 28 per cent of the population (9.7 million Canadians) aged 15 and above provided unpaid care to a family member, friend or neighbour ( Fast, 2015 ). While 74 per cent of carers spent under ten hours per week on care, 10 per cent of them provided unpaid

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575 International Journal of Care and Caring • vol 2 • no 4 • 575–80 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15411706605330 debates and issues ‘Special mothers’ in Ireland: gender, identity and the social construction of caring for a relative with an intellectual disability Mary Cronin, maryecronin@gmail.com National University of Ireland Maynooth, Ireland Gender balance in caring is heavily skewed towards women providing the majority of care. This is particularly evident in literature relating

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Introduction Support coordination refers to assistance provided to effectively navigate and implement cohesive and collaborative services and supports across various systems and sectors. For people with disability and complex needs, it should optimise service provision coordination and reduce the risk of inadequate and inefficient services. If appropriately designed and performed, support coordination should lead to: better understanding of individual need; informed choices about appropriate providers; stronger relationships and communication with service

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The rapid economic growth of the past few decades has radically transformed India’s labour market, bringing millions of former agricultural workers into manufacturing industries, and, more recently, the expanding service industries, such as call centres and IT companies.

Alongside this employment shift has come a change in health and health problems, as communicable diseases have become less common, while non-communicable diseases, like cardiovascular problems, and mental health issues such as stress, have increased.

This interdisciplinary work connects those two trends to offer an analysis of the impact of working conditions on the health of Indian workers that is unprecedented in scope and depth.

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Policy Making in a Global Pandemic
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Risk has emerged as a key mechanism for controlling the future and learning from past misfortunes.

How did risk influence policy makers’ responses to COVID-19? How will they be judged for their decisions?

Drawing on case studies from the UK, China, Japan, New Zealand and the US, this original text explores policy responses to COVID-19 through the lens of risk. The book considers how different countries framed the pandemic, categorised their populations and communicated risk. It also evaluates the role of the media, conspiracy theories and hindsight in shaping responses to COVID-19.

As we reflect on the ‘first wave’, this book offers a vital resource for anticipating future responses to crises.

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Public Health and Social Care Policy in England During the First Wave
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Providing an account of the policy response to COVID-19 in England, this book analyses the political and long-term systemic factors associated with the failures to control the first wave of the pandemic during 2020.

It explores the part played by key policy actors, particularly politicians and scientists, and focuses on two difficult policy issues during the first wave: the establishment of a ‘test, trace and isolate’ system and responses to the high death rate in care homes for older people.

Drawing on a wide range of documentary evidence, including parliamentary papers and SAGE minutes, this book draws attention to the importance of longstanding structural problems in public health and the care sector, especially the impact of outsourcing and privatisation.

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