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that while national differences in supports to carers exist, generally, the supports available are often fragmented and inadequate. Supporting carers becomes even more urgent in the context of COVID-19. Supports normally available in the community (such as various forms of respite care for carers) may suddenly become unavailable. Older adults with serious illnesses or disabilities who normally reside in congregate settings such as long-term care (LTC) homes may need to reside with family members temporarily due to outbreaks in LTC homes. As we prepare for the
academics with disabilities, chronic illnesses and/or neurodivergences, but the nature of the topic clearly affected and interested that group of scholars the most. I know that every single delegate had one form of need or another. Second, and related to the fact that every delegate had disclosed some need, the conference was the first of its kind by way of accessibility and inclusion. The event was organised in such a way that delegates could participate in and contribute to within the halls of the conference setting, but also remotely from home. The organisation had
, disability and infirmity form rather more contingent sources of social division in part because of the temporal flux within which they emerge. There is a distinction, for example, between the predictable status of becoming aged and the less predictable status of becoming disabled, ill or infirm. Most people see bodily change as constituting the ‘authentic’ basis of age and ageing; reminders of the inevitable temporality that is attached to identity, location and status. Those changes that are evidenced by the ageing body, which do not reflect illness or impairment, best
Introduction Academia is directed by policy and government legislation when managing students and, as such, the requirements of the Equality Act 2010 to meet the accessibility needs of disabled students are fulfilled. We can see, however, that even within society the inequalities and needs of individuals are not always met (Smith, 2017 ). Alongside this sits the discussion about the terminology we use and how that impacts on the social construct of disability. By exploring some of the historical perspectives and definitions that have emerged, and in
give or receive care ( Knijn and Kremer, 1997 ). At the heart of this exclusion is the value (or lack thereof) placed upon care and its association with the private domain. Tronto (1993) suggests that the inability to think of care outside of privatised and gendered terms is not a failure of care, but a constraint in the social contexts in which caring practices occur in society. Exclusionary practices particularly affect women with disabilities, whose parental rights are not always recognised. For many mothers with disabilities, especially those with intellectual
Introduction In this chapter, I reflect critically on my experiences of making my disability visible in teaching, through the process of asking students to engage in particular behaviours which improve the accessibility of my role as their lecturer. I use critical and feminist disability studies work to reflect on how this has been – and still is – a difficult, discomforting decision and process. I conclude with some reflective questions for disabled academics, and some recommendations. This is personal Before starting, I want to make clear that my
273 International Journal of Care and Caring • vol 2 • no 2 • 273–77 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15224823740266 debates and issues THEMED ISSUE • Variations and innovations in care and care work: Critical perspectives User-controlled personal assistance – the case of persons with intellectual disabilities Anne-Britt Horn Hanssen, abhh@oliviaassistanse.no Head of Olivia Assistance, Norway Sidsel Maxwell Grasli, smg@oliviaassistanse.no Senior Advisor, Olivia Assistance, Norway key words
587 International Journal of Care and Caring • vol 2 • no 4 • 587–93 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15411706368334 debates and issues Underpricing care: a case study of Australia’s National Disability Insurance Scheme Natasha Cortis, n.cortis@unsw.edu.au University of New South Wales, Australia Fiona Macdonald, Fiona.macdonald@rmit.edu.au RMIT University, Australia Bob Davidson, bob.davidson@mq.edu.au Macquarie University, Australia Eleanor Bentham, eleanor.bentham@rmit.edu.au RMIT
experiences of those with embodied differences, such as those with disability, chronic illness or neurodivergence. Embodiment The term embodiment is contested (Sheets-Johnstone, 2015 ), and part of the battle of using the word is the need to continuously define and determine what we mean by it. For some sociologists the idea of embodiment relates to how we perform our identity, the clothes we wear, whether we choose to have tattoos, piercings, or the way that we display to others how we choose to identify ourselves within society (Evans et al, 2004 ). When it comes
Introduction Older adults living with disabilities in Canada often require assistance from a relative or friend (that is, a family carer) ( Kokorelias et al, 2020 ). Based on 2012 estimates, 13.7 per cent of the Canadian population (4.8 million Canadians) lived with disabilities ( Statistics Canada, 2013 ) and 28 per cent of the population (9.7 million Canadians) aged 15 and above provided unpaid care to a family member, friend or neighbour ( Fast, 2015 ). While 74 per cent of carers spent under ten hours per week on care, 10 per cent of them provided unpaid
