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that while national differences in supports to carers exist, generally, the supports available are often fragmented and inadequate. Supporting carers becomes even more urgent in the context of COVID-19. Supports normally available in the community (such as various forms of respite care for carers) may suddenly become unavailable. Older adults with serious illnesses or disabilities who normally reside in congregate settings such as long-term care (LTC) homes may need to reside with family members temporarily due to outbreaks in LTC homes. As we prepare for the
give or receive care ( Knijn and Kremer, 1997 ). At the heart of this exclusion is the value (or lack thereof) placed upon care and its association with the private domain. Tronto (1993) suggests that the inability to think of care outside of privatised and gendered terms is not a failure of care, but a constraint in the social contexts in which caring practices occur in society. Exclusionary practices particularly affect women with disabilities, whose parental rights are not always recognised. For many mothers with disabilities, especially those with intellectual
273 International Journal of Care and Caring • vol 2 • no 2 • 273–77 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15224823740266 debates and issues THEMED ISSUE • Variations and innovations in care and care work: Critical perspectives User-controlled personal assistance – the case of persons with intellectual disabilities Anne-Britt Horn Hanssen, abhh@oliviaassistanse.no Head of Olivia Assistance, Norway Sidsel Maxwell Grasli, smg@oliviaassistanse.no Senior Advisor, Olivia Assistance, Norway key words
587 International Journal of Care and Caring • vol 2 • no 4 • 587–93 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15411706368334 debates and issues Underpricing care: a case study of Australia’s National Disability Insurance Scheme Natasha Cortis, n.cortis@unsw.edu.au University of New South Wales, Australia Fiona Macdonald, Fiona.macdonald@rmit.edu.au RMIT University, Australia Bob Davidson, bob.davidson@mq.edu.au Macquarie University, Australia Eleanor Bentham, eleanor.bentham@rmit.edu.au RMIT
Introduction Older adults living with disabilities in Canada often require assistance from a relative or friend (that is, a family carer) ( Kokorelias et al, 2020 ). Based on 2012 estimates, 13.7 per cent of the Canadian population (4.8 million Canadians) lived with disabilities ( Statistics Canada, 2013 ) and 28 per cent of the population (9.7 million Canadians) aged 15 and above provided unpaid care to a family member, friend or neighbour ( Fast, 2015 ). While 74 per cent of carers spent under ten hours per week on care, 10 per cent of them provided unpaid
This Handbook is the definitive resource for anyone wishing to quickly look up and understand key concepts and measurements relating to socioeconomic position and inequalities.
A range of key concepts is defined and measures of socioeconomic position and inequality described. Alphabetical listings, cross-referencing, graphs and worked examples, references to web and other sources of further information, all contribute to making the Handbook both engaging and accessible for a wide audience.
For students, academics and others involved in social science research it answers questions such as:
'What's the official government measure of poverty?'
'What factors make up the Townsend Index of Deprivation?'
'What is a gini coefficient?'
'I have to write a report on tackling inequalities in my area - what are the key issues I should consider before I begin?' For practitioners, policy makers, journalists and others who must read, understand and use research in fields as diverse as health, criminology, education, the environment, transport and housing it provides a one-stop, authoritative guide to making sense of and evaluating the significance of often complex methodologies. The authors are all eminent researchers in the field of health inequalities. They have together produced two glossaries for the Journal of Epidemiology and Community Health and have published a large number of books and articles in learned academic journals.
575 International Journal of Care and Caring • vol 2 • no 4 • 575–80 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15411706605330 debates and issues ‘Special mothers’ in Ireland: gender, identity and the social construction of caring for a relative with an intellectual disability Mary Cronin, maryecronin@gmail.com National University of Ireland Maynooth, Ireland Gender balance in caring is heavily skewed towards women providing the majority of care. This is particularly evident in literature relating
Introduction Support coordination refers to assistance provided to effectively navigate and implement cohesive and collaborative services and supports across various systems and sectors. For people with disability and complex needs, it should optimise service provision coordination and reduce the risk of inadequate and inefficient services. If appropriately designed and performed, support coordination should lead to: better understanding of individual need; informed choices about appropriate providers; stronger relationships and communication with service
New public health governance arrangements under the coalition government have wide reaching implications for the delivery of health inequality interventions.
Through the framework of understanding health inequalities as a 'wicked problem' the book develops an applied approach to researching, understanding and addressing these by drawing on complexity theory. Case studies illuminate the text, illustrating and discussing the issues in real life terms and enabling public health, health promotion and health policy students at postgraduate level to fully understand and address the complexities of health inequalities.
The book is a valuable resource on current UK public health practice for academics, researchers and public health practitioners.
Epdf and ePUB available Open Access under CC BY NC ND licence.
The COVID-19 pandemic affected everyone – but, for some, existing social inequalities were exacerbated, and this created a vital need for research.
Researchers found themselves operating in a new and difficult context; they needed to act quickly and think collectively to embark on new research despite the constraints of the pandemic. This book presents the collaborative process of 14 research projects working together during COVID-19. It documents their findings and explains how researchers in the voluntary sector and academia responded methodologically, practically, and ethically to researching poverty and everyday life for families on low incomes during the pandemic.
This book synthesises the challenges of researching during COVID-19 to improve future policy and practice.
Also see ‘A Year Like No Other: Family Life on a Low Income in COVID-19’ to find out more about the lived experiences of low-income families during the pandemic.
