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that while national differences in supports to carers exist, generally, the supports available are often fragmented and inadequate. Supporting carers becomes even more urgent in the context of COVID-19. Supports normally available in the community (such as various forms of respite care for carers) may suddenly become unavailable. Older adults with serious illnesses or disabilities who normally reside in congregate settings such as long-term care (LTC) homes may need to reside with family members temporarily due to outbreaks in LTC homes. As we prepare for the
give or receive care ( Knijn and Kremer, 1997 ). At the heart of this exclusion is the value (or lack thereof) placed upon care and its association with the private domain. Tronto (1993) suggests that the inability to think of care outside of privatised and gendered terms is not a failure of care, but a constraint in the social contexts in which caring practices occur in society. Exclusionary practices particularly affect women with disabilities, whose parental rights are not always recognised. For many mothers with disabilities, especially those with intellectual
229 SIXTEEN Ethical dilemmas in caring for people with complex disabilities Keith Andrews Summary Complex disabilities, usually of a neurological cause, result in a combination of physical, cognitive and behavioural disorders. The disabilities not only affect the individual but also the family and to some extent society. The impact of these disabilities creates a range of ethical dilemmas in the areas of confidentiality; decision making for those who lack mental capacity; advance statements; decisions about withholding or withdrawing treatment; and involvement of
273 International Journal of Care and Caring • vol 2 • no 2 • 273–77 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15224823740266 debates and issues THEMED ISSUE • Variations and innovations in care and care work: Critical perspectives User-controlled personal assistance – the case of persons with intellectual disabilities Anne-Britt Horn Hanssen, abhh@oliviaassistanse.no Head of Olivia Assistance, Norway Sidsel Maxwell Grasli, smg@oliviaassistanse.no Senior Advisor, Olivia Assistance, Norway key words
587 International Journal of Care and Caring • vol 2 • no 4 • 587–93 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15411706368334 debates and issues Underpricing care: a case study of Australia’s National Disability Insurance Scheme Natasha Cortis, n.cortis@unsw.edu.au University of New South Wales, Australia Fiona Macdonald, Fiona.macdonald@rmit.edu.au RMIT University, Australia Bob Davidson, bob.davidson@mq.edu.au Macquarie University, Australia Eleanor Bentham, eleanor.bentham@rmit.edu.au RMIT
Introduction Older adults living with disabilities in Canada often require assistance from a relative or friend (that is, a family carer) ( Kokorelias et al, 2020 ). Based on 2012 estimates, 13.7 per cent of the Canadian population (4.8 million Canadians) lived with disabilities ( Statistics Canada, 2013 ) and 28 per cent of the population (9.7 million Canadians) aged 15 and above provided unpaid care to a family member, friend or neighbour ( Fast, 2015 ). While 74 per cent of carers spent under ten hours per week on care, 10 per cent of them provided unpaid
While ethics has been addressed in the health care literature, relatively little attention has been paid to the subject in the field of social care. This book redresses the balance by examining theory, research, policy and practice in both fields.
The analysis is set within the context of contemporary challenges facing health and social care, not only in Britain but internationally. Contributors from the UK, US and Australia consider ethical issues in health and social care research and governance; interprofessional and user perspectives; ethics in relation to human rights, the law, finance, management and provision; key issues of relevance to vulnerable groups such as children and young people, those with complex disabilities, older people and those with mental health problems and lifecourse issues - ethical perspectives on a range of challenging areas from new technologies of reproduction to euthanasia.
This book is intended for academics, students and researchers in health and social care who need an up-to-date analysis of contemporary issues and debates. It will also be useful to practitioners in the public, private and voluntary sectors, including social workers, community workers, those working in the fields of disability and mental health and with older people.
Issues relating to alcohol ‘misuse’ can only properly be understood within their social and environmental contexts. This research and practice based book explores social models of alcohol misuse to offer a sociological approach to its treatment.
Through considering the social meaning of women’s alcohol use, the book challenges current policy and practice in the field. It raises concerns about the political role of ‘treatment’ in making women behave, or to be ‘well’, and aims to develop a new approach to women’s drinking and new ways of aiding recovery, at national and local levels.
With contributions from service users, academics and practitioners, this is essential reading for those studying addiction, gender and the social background to alcohol problems.
575 International Journal of Care and Caring • vol 2 • no 4 • 575–80 • © Policy Press 2018 Print ISSN 2397-8821 • Online ISSN 2397-883X • https://doi.org/10.1332/239788218X15411706605330 debates and issues ‘Special mothers’ in Ireland: gender, identity and the social construction of caring for a relative with an intellectual disability Mary Cronin, maryecronin@gmail.com National University of Ireland Maynooth, Ireland Gender balance in caring is heavily skewed towards women providing the majority of care. This is particularly evident in literature relating
Introduction Support coordination refers to assistance provided to effectively navigate and implement cohesive and collaborative services and supports across various systems and sectors. For people with disability and complex needs, it should optimise service provision coordination and reduce the risk of inadequate and inefficient services. If appropriately designed and performed, support coordination should lead to: better understanding of individual need; informed choices about appropriate providers; stronger relationships and communication with service
