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EPDF and EPUB available Open Access under CC-BY-NC-ND licence. Groups most severely affected by COVID-19 have tended to be those marginalised before the pandemic and are now being largely ignored in developing responses to it.
This two-volume set of Rapid Responses explores the urgent need to put co-production and participatory approaches at the heart of responses to the pandemic and demonstrates how policymakers, health and social care practitioners, patients, service users, carers and public contributors can make this happen.
The second volume focuses on methods and means of co-producing during a pandemic. It explores a variety of case studies from across the global North and South and addresses the practical considerations of co-producing knowledge both now - at a distance - and in the future when the pandemic is over.
EPDF and EPUB available Open Access under CC-BY-NC-ND licence. Groups most severely affected by COVID-19 have tended to be those marginalised before the pandemic and are now largely being ignored in developing responses to it.
This two-volume set of Rapid Responses explores the urgent need to put co-production and participatory approaches at the heart of responses to the pandemic and demonstrates how policymakers, health and social care practitioners, patients, service users, carers and public contributors can make this happen.
The first volume investigates how, at the outset of the pandemic, the limits of existing structures severely undermined the potential of co-production. It also gives voice to a diversity of marginalised communities to illustrate how they have been affected and to demonstrate why co-produced responses are so important both now during this pandemic and in the future.
Avoiding both over-simplification and jargon-riddled complexity, this book is an invaluable, straightforward guide to participatory research for you and your fellow practitioners working with community groups and organisations.
The book offers a blueprint for your research project, taking you through each stage of the process, from planning your project to disseminating your findings. Keeping in mind imperatives such as engagement, involvement and voice, the book explores how best to conduct your research in ways which are meaningful for the participants.
The book includes valuable resources such as reflection points, chapter summaries and further reading lists. It will encourage and empower practitioners to plan and execute participatory research projects with confidence.
This book invites the reader to think about collaborative research differently. Using the concepts of ‘letting go’ (the recognition that research is always in a state of becoming) and ‘poetics’ (using an approach that might interrupt and remake the conventions of research), it envisions collaborative research as a space where relationships are forged with the use of arts-based and multimodal ways of seeing, inquiring, and representing ideas.
The book’s chapters are interwoven with ‘Interludes’ which provide alternative forms to think with and another vantage point from which to regard phenomena, pose a question, and seek insights or openings for further inquiry, rather than answers. Altogether, the book celebrates collaboration in complex, exploratory, literary and artistic ways within university and community research.
Introduction There has been much attention given to the relationship between early life socio-economic disadvantage and poorer health outcomes and disability in population health research. This association has been demonstrated across various objective and subjective measures, in both adults and children ( Nikiéma et al, 2012 ; Nobles et al, 2013 ; Darin-Mattsson et al, 2017 ; Doebler and Glasgow, 2017 ; Kivimäki et al, 2020 ). It is only recently that researchers have begun to focus on the impact on adolescent health, recognising the long
51 6 A co- produced response to COVID- 19 Impact on women and girls with disabilities in low- and middle- income countries Peter O. Ekiikina Background Co- production is an approach in which researchers, practitioners, and public or community put a concerted effort to work together as a team to achieve a sustainable desired goal centred on power sharing and responsibility. I would like to assert that co- production seems to be like rights- based approaches to development, implying that it involves the community or public ‘voice’ to participate in matters
Co-production human rights legislation. A global report on disability rights during the pandemic drew ‘the worrying conclusion that states have overwhelmingly failed to take sufficient measures to protect the rights of persons with disabilities in their response to the pandemic. … Perhaps most troubling of all, it highlights that some states have actively pursued policies which result in wide scale violations of the rights to life and health of persons with disabilities, as well as impacting on a wide range of other rights’ (Brennan, 2020:7). One
disability. Many people with energy limiting chronic illness (ELCI) are in this category. Those of us (including ourselves) in this situation have historically been excluded from activities of co- production, among other forms of participation, that have tended to rely on meeting in physical spaces. But the pandemic has shown that our exclusion is not inevitable. 124 Working Together at a Distance We must seize the opportunity provided by this unexpected remote access revolution to prevent a return to pre- pandemic inequality and exclusion. In this chapter, we
causes of death and in the accessi- bility of healthcare (Marmot et al, 2020). The COVID- 19 Marmot Review (Marmot et al, 2020) has illustrated that this inequity in society lies at the heart of why some groups have higher mortality rates and have been more severely affected by the pandemic than others. For example, Office for National Statistics, have shown the unequal mortality impact of the virus on Black and Asian groups (ONS 16 Oct, 2020a), those with disabilities (ONS 11 Feb, 2021), and those living in the most deprived areas (ONS 28 Aug, 2020b). Overall
struc- tural inequalities before the pandemic began (Bambra et al, 2020; Marmot et al, 2020). The virus has been particularly pervasive and destructive in its impact on Black, Asian, and minoritised ethnic groups; people of lower socioeconomic status; people in undervalued employment; people living in deprived areas, poor housing, and/ or overcrowded accom- modation; older people; disabled people; people with learn- ing difficulties; people with psycho- social disabilities; and people with long term conditions – especially those who rely on social care. This
