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Nearly 20% of the population has a disability. Despite this, mainstream research often does not explicitly address the methodological and practical issues that can act as barriers to disabled people’s participation in social research. In this book, Aidley and Fearon provide a concise, practical introduction to making it easier for everyone to take part in research.
Requiring no prior knowledge about accessible research methods, the book:
• explains how removing barriers to participation will improve the quality of the research;
• covers the research process from design, to collecting data, to dissemination and publication;
• includes checklists and further reading, as well as useful examples and vignettes to illustrate how issues play out in practice.
This book will be invaluable to researchers from a variety of backgrounds looking to increase participation in their research, whether postgraduate students, experienced academic researchers, practitioners or professionals.
What are the implications of caring about the things we research? How does that affect how we research, who we research with and what we do with our results? Proposing what Tronto has called a ‘paradigm shift’ in research thinking, this book invites researchers across disciplines and fields of study to do research that thinks and acts with care.
The authors draw on their own and others’ experiences of researching, the troubles they encounter and the opportunities generated when research is approached as a caring practice. Care ethics provides a guide from starting out, designing and conducting projects, to thinking about research legacies. It offers a way in which research can help repair harms and promote justice.
As researchers have begun to adapt to the continuing presence of COVID-19, they have also begun to reflect more deeply on fundamental research issues and assumptions. Researchers around the world have responded in diverse, thoughtful and creative ways – from adapting data collection methods to fostering researcher and community resilience, while also attending to often urgent needs for care.
This book, part of a series of three Rapid Responses, connects themes of care and resilience, addressing their common concern with wellbeing. It has three parts: addressing researchers’ wellbeing, considering participants’ wellbeing, and exploring care and resilience as a shared and mutually entangled concern.
The other two books focus on Response and Reassessment, and Creativity and Ethics. Together they help academic, applied and practitioner-researchers worldwide adapt to the new challenges COVID-19 brings.
EPDF and EPUB available Open Access under CC-BY-NC-ND licence.
Written by a leading expert in the field, this practical and accessible book is an essential guide to knowledge exchange, impact and research dissemination in health and social care.
Providing the why, what, who, how and when of research impact, the book helps researchers turn raw findings into useful, high-impact evidence for policymakers, practitioners and the public. It includes insightful interviews from leading journalists, science communicators, researchers and influencers in health and social care, as well as practical exercises, insider tips and case studies. The book will help researchers at all stages of their career to maximise the impact of their work.
As the COVID-19 pandemic hit researchers’ plans, discussion swiftly turned to adapting research methods for a locked-down world. The ‘big three’ methods – questionnaires, interviews and focus groups – can only be used in a few of the same ways as before the pandemic.
Researchers around the world have responded in diverse, thoughtful and creative ways – from adapting their data collection methods, to fostering researcher resilience and rethinking researcher-researched relationships.
This book, part of a series of three Rapid Responses, showcases new methods and emerging approaches. Focusing on Response and Reassessment, it has three parts: the first looks at the turn to digital methods; the second reviews methods in hand and the final part reassesses different needs and capabilities.
The other two books focus on Care and Resilience, and Creativity and Ethics. Together they help academic, applied and practitioner-researchers worldwide adapt to the new challenges COVID-19 brings.
As researchers continue to adapt, conduct and design their research in the presence of COVID-19, new opportunities to connect research creativity and ethics have opened up. Researchers around the world have responded in diverse, thoughtful and creative ways–adapting data collection methods, fostering researcher and community resilience, and exploring creative research methods.
This book, part of a series of three Rapid Responses, explores dimensions of creativity and ethics, highlighting their connectedness. It has three parts: the first covers creative approaches to researching. The second considers concerns around research ethics and ethics more generally, and the final part addresses different ways of approaching creativity and ethics through collaboration and co-creation.
The other two books focus on Response and Reassessment, and Care and Resilience. Together they help academic, applied and practitioner-researchers worldwide adapt to the new challenges COVID-19 brings.
19 2 Research that includes disabled people In this chapter we give a brief background to some of the key research models and methods in the field of disability studies, which has generated much of the conceptual work that informs the ideas presented in this book. The chapter includes: • Definitions of disability, and how these relate to models of disability. • The importance of using inclusive language and terminology, exemplified by the debate between the use of ‘disabled people’ vs ‘people with disabilities’. • An explanation of the distinction between
1 1 Introduction Aim and audience of the book The starting point for this book is the observation that current research methods and methodologies constitute potential barriers for disabled people to participate in research. It is our experience that, outside research explicitly focusing on disability, accessibility is rarely, if ever, seen as a concern in the research planning stage (see also Berghs et al, 2016). We both feel strongly that, as researchers, it is our responsibility to make research more accessible, both for ethical and methodological
69 4 Sampling Disabled people have frequently been excluded from research through an inflexible approach to sampling (Rios et al, 2016). This is the case even when, by making adaptations to the way the research is conducted, many disabled people could have taken part. Researchers argue that the reasons for exclusion relate to ‘overestimation of vulnerability, underestimation of ability, lack of experience and discomfort with disability, devaluing and disrespecting attitudes, research requiring sample homogeneity, and lack of foresight and accommodation
, interactions with participants are influenced by the researcher’s disability: Felicity [Boardman]’s identity as a disabled person operated differently depending on whether she was interviewing non-disabled or disabled people. At times a “disabled identity” appeared to signal shared experiences, the “right” to research, and take on board the concerns and issues of disabled populations, providing her with “insider status”. (Brown and Boardman, 2011, p 25) It is important to keep in mind that disabled researchers may also be dealing with barriers to access, and that we
