Crises such as the COVID-19 pandemic, disasters, or violent conflict present numerous challenges for researchers. Faced with disruption, obstacles, and even danger to their own lives, researchers in times of crisis must adapt or redesign existing research methods in order to continue their work effectively.
Including contributions on qualitative and digital research from Europe, Asia, Africa, Australasia, and the Americas, this volume explores the creative and thoughtful ways in which researchers have adapted methods and rethought relationships in response to challenges arising from crises. Their collective reflections, strategies, and practices highlight the importance of responsive, ethical, and creative research design and the need to develop methods for fostering mutual, reflexive, and healthy relationships in times of crisis.
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Though a globally shared experience, the COVID-19 pandemic has affected societies across the world in radically different ways. This book examines the unique implications of the pandemic in the Global South.
With international contributors from a variety of disciplines including health, economics and geography, the book investigates the pandemic’s effects on development, medicine, gender (in)equality and human rights among other issues. Its analysis illuminates further subsequent crises of interconnection, a pervasive health provision crisis and a resulting rise in socio-economic inequality.
The book’s assessment offers an urgent discourse on the ways in which the impact of COVID-19 can be mitigated in some of the most challenging socio-economic contexts in the world.
initial design. The process of gaining institutional ethical approval focused my attention on the potential ethical pitfalls of including people in research ‘with different ways of thinking and learning’ ( McKanan, 2020 : 5). Assumptions of vulnerability linked to a diagnosis, particularly in relation to intellectual disability within institutional ethics guidelines, often discourage the inclusion of participants considered vulnerable ( Snipstad, 2020 : 1). However, from a moral and human rights perspective (CRPD, 2014; NDA, 2009), persons with support needs have the
-questioning and invite scrutiny. From such ‘negotiated ethics’ ( Lehner-Mear, 2019 ), we can create different ways to form allyship in engaged and collaborative research, sharing decision-making. Through this, we better understand our own role and that of our contributors/beneficiaries, resisting what disability studies has termed ‘academic parasitism’ ( Stone and Priestley, 1996 ). Such interrogation may result in stepping back, stepping away, rescinding control, passing to others. Perhaps most significantly, such reflexive examination recognises that our partners and
phenomena of social science research ( Estrada, 2018 ). Here is an example of a protocol writing (that is, lived-experience description), provided by a social science researcher in the interpretive protocol, regarding his/her experience of starting to engage with research participants to conduct research ethically: As I started meeting my participants, it was a bit different though. I was interviewing students with some form of disability in a classroom. My consent for interviewing these early teenage kids was provided by the principal of the school. I did not know if
through their focus on superheroes and villians, for example. Serious comics produce complex, textured, and even absurdist storylines. They are avant-garde; they are political; and they are taboo-shattering. They tackle issues such as disaster ( Neufeld, 2016 ); war ( Sacco, 2003 ); sex ( Road, 2012 ); genocide ( Stassen, 2006 ); mental health ( Bechdel, 2007 ); inequality ( Sulaiman, 2017 ); illness and disability ( Bell, 2014 ); queerness ( Tamaki, 2014 ); and civil rights ( Lewis and Aydin, 2016 ). Inspired by the notion that comics can deal with ‘serious’, real
. The chapter by Koppe concerns ethnography accompanying a community including people with cognitive disability in Ireland, while Walsh (also based in Ireland) reflexively researches with a transformative learning organisation and community in Guatemala. The transnational dimension of this book forms an appropriate backdrop for the rich and complex discussions of methods and ethics in its chapters. Reviewing two decades of social science research on disasters, Alexander (2002) found too much reliance on ‘pet’ intra-disciplinary discourses and too little discussion
The global COVID-19 pandemic poses evolving dilemmas of disease, death, disability and economic and sociopolitical inequalities and injustices, as the SARS-CoV-2 virus continues to spread and variants evolve. This chapter reflects on the way disinformation has been used by reactionary and populist political actors in Brazil, with serious implications for the national health system (Sistema Único de Saúde, SUS) and global public health. Official misinformation and disinformation – promoting unproven ‘early treatment’, for example – impacts public understanding
for a variety of community perspectives to feed into decision making, with an emphasis on the participation of groups that are vulnerable to both climate impacts and to the impacts of climate policies themselves. This will require, as a minimum, vulnerability, and risk assessments to be conducted for communities across the city to assess the projected impacts, feeding in the lived experiences of individuals from these groups. Civil society groups in Bristol, including the Black and Green Ambassadors and the Bristol Disability Equality Forum, are already working to
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