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authority adult social services ( National Audit Office, 2018 ). Furthermore, the evidence of the effectiveness of carer-specific interventions to improve carers’ quality of life (QoL) is relatively weak due to methodological constraints, specifically, in terms of suitable outcome measures ( Pickard, 2004 ). Studies tend to use carer-specific or generic measures to capture burden/strain, health-related QoL or psychological outcomes; however, these may not be sensitive to the effect of social care interventions. The development of the Adult Social Care Outcomes Toolkit for
recent policy developments in Australia have made it more difficult for carers to access support in their own right. They raise their concerns that progress for carers has ‘stalled, stuck at the level of “recognition”’, and discuss this as a symptom of a more foundational challenge facing the carers’ movement in Australia and internationally. In ‘Issues and challenges in comparing carers’ quality of life in England and Japan: Findings from the Japanese translation of the Adult Social Care Outcomes Toolkit for Carers’, Mai Yamaguchi (Japan Lutheran College) and Stacey
and well-being needs. The study they report used the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer) interview to examine the relationship between community-based care services and carers’ quality of life in qualitative interviews and a survey of carers in England. They find that both carer-specific interventions and support for the care recipient may enable carers to maintain their own health and well-being alongside caring. Our May 2020 Debates and Issues section features contributions from the UK and Finland. In ‘Cygnus: a psychoeducational group
Introduction Improving the quality of life of carers is the ultimate goal of carers’ policy and support services. This article discusses the issues and challenges in conceptualising and comparing carers’ quality of life in England and Japan, based on developing a Japanese version of the self-completion Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer). Since supporting carers in employment is a key concern in both countries, we particularly focus on this group of carers. Contextual similarities and differences between England and Japan Before
://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/social-care-user-surveys Rand , S. , Malley , J. , Forder , J. and Netten , A. ( 2015 ) Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer) , Quality of Life Research , 24 ( 11 ): 2601 – 14 . Rand , S. , Forder , J. and Malley , J. ( 2017 ) A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers , Quality of Life Research , 26 ( 12 ): 3307 – 21 . Tronto , J. ( 1993 ) Moral Boundaries: A Political Argument for an Ethic of
