147 SEVEN Living with ‘disability’ Throughout this book the main focus has been to show how interactions with changing public policies and institutions affected people’s private lives, and how individuals and their families navigated life choices in policy contexts. The two preceding chapters illustrated specific developments with reference to education and employment. This final chapter takes a step back to review, more holistically, how disability revealed itself in people’s lives over time and how this impacted on the negotiation of personal identity
that while national differences in supports to carers exist, generally, the supports available are often fragmented and inadequate. Supporting carers becomes even more urgent in the context of COVID-19. Supports normally available in the community (such as various forms of respite care for carers) may suddenly become unavailable. Older adults with serious illnesses or disabilities who normally reside in congregate settings such as long-term care (LTC) homes may need to reside with family members temporarily due to outbreaks in LTC homes. As we prepare for the
This book reports on the first substantial UK study of parenting, disability and mental health. It examines the views of parents and children in 75 families. Covering a broad spectrum of issues facing disabled parents and their families, Parenting and disability:
provides a comprehensive review of relevant policy issues;
explores the barriers to full participation in parenting that disabled parents face;
examines the complex ways in which broader social divisions, including gender and socioeconomic status, interact with disability;
advocates measures to support disabled parents and their families by promoting and supporting relationships within the family.
The book is aimed at a wide audience, including students and academics in social policy, social work, disability studies, sociology, education, and nursing, people working in the voluntary sector, disabled activists and their supporters, as well as policy makers and practitioners in a range of statutory agencies.
What does it mean to live a good life? Why has it proved so difficult for people with intellectual disabilities to live one? What happens when we make a good life the centre of our consideration of people with intellectual disabilities? These questions are explored through a re-examination of ideas from philosophy and social theory, and through personal life stories. This important and timely book provides an analysis and critique of current policies and underpinning ideologies in relation to people with intellectual disabilities and explores ways in which a good life may be made more attainable.
six Disability Introduction Social citizenship rights have never been fully extended to disabled people and, as a result of this, disabled people are over-represented among the unemployed and experience higher rates of poverty and in general do not enjoy a standard of living that is comparable with current social expectations. Over time there has been an uneasy relationship between healthcare professionals and disabled people. Professional social work has operated from a framework that encourages paternalism and dependency as part of an individualised
119 8Disability Practice scenario kate is a 31-year-old woman with a degenerative condition that necessitates using a wheelchair. She lives in the family home with her mother and brother in a rural area. Her mother works part-time as a cleaner and her brother stacks shelves in the nearby supermarket. Her benefits bring her a greater income than either her mother or brother earn and she feels guilty about this. the family have no transport. She has recently come out to her social worker as lesbian but she does not want her family to know. Her condition
131 SIx Equality, identity and disability introduction Consistent with social work codes of ethics and mainstream social policy objectives, the disability rights movement (DRM) promotes the universal values of equal rights and individual autonomy, drawing heavily on Kantian philosophy. However, I argue here that an anti-universalised Nietzschean perspective is also promoted via specific interpretations of the social model of disability, explored in Chapter Five, that challenge the political orthodoxy of rights-based social movements and the aspirations of
11 Part One Disjunctures between disability and madness
113 Part Three Applying social models of disability
