Directly funded home care provides funds to individuals to arrange their own services. We ask, what is unique about being a directly funded home care worker? Our qualitative case study in Manitoba, Canada, included an online survey of 95 directly funded workers and interviews with 13 key informants, 24 clients and/or family managers, and 23 workers. Framed by feminist and disability care theories, we found ‘social task shifting’, that is: work that keeps households running and supports socialising; front-line worker involvement in care administration; and blurred relationships. Some directly funded workers are empowered by social task shifting, though the expectations can feel limitless.
Aronson, J. and Neysmith, S.M. (1996) “You’re not just in there to do the work”: depersonalizing policies and the exploitation of home care workers’ labor, Gender & Society, 10(1): 59–77.
Atanackovic, J. and Bourgeault, I.L. (2013) The employment and recruitment of immigrant care workers in Canada, Canadian Public Policy/Analyse de Politiques, 39(2): 335–50.
Carlson, B.L., Foster, L., Dale, S.B. and Brown, R. (2007) Effects of cash and counseling on personal care and well-being, Health Services Research, 42(1 pt 2): 467–87.
Christensen, K. (2010) Caring about independent lives, Disability & Society, 25(2): 241–52.
Conradi, E. (2020) Theorising care: attentive interaction or distributive justice?, International Journal of Care and Caring, 4(1): 25–42.
Coyte, P.C. and McKeever, P. (2016) Home care in Canada: passing the buck, Canadian Journal of Nursing Research Archive, 33(2), http://cjnr.archive.mcgill.ca/article/view/1631.
Cranford, C.J. (2005) From precarious workers to unionized employees and back again? The challenges of organizing personal-care workers in Ontario, in C.J. Cranford, J. Fudge, E. Tucker and L.F. Vosko (eds) Self-Employed Workers Organize: Law, Policy and Unions, Montreal: Kingston McGill-Queen’s University Press, pp 96–135.
Cranford, C.J. (2020) Home Care Fault Lines: Understanding Tensions and Creating Alliances, Ithaca, NY: Cornell University Press.
Daly, M. (2002) Care as a good for social policy, Journal of Social Policy, 31(2): 251–70.
Daly, T., Armstrong, P. and Lowndes, R. (2016) Liminality in Ontario’s long-term care facilities: private companions’ care work in the space ‘betwixt and between’, Competition & Change, 19(3): 246–63.
Denton, M., Brookman, C., Zeytinoglu, I., Plenderleith, J. and Barken, R. (2015) Task shifting in the provision of home and social care in Ontario, Canada: implications for quality of care, Health & Social Care in the Community, 23(5): 485–92.
England, K. and Dyck, I. (2012) Migrant workers in home care: routes, responsibilities, and respect, Annuals of the Association of American Geographers, 102(5): 1076–83.
Fine, M. (2015) Cultures of Care, in J. Twigg and W. Martin (eds) Routledge Handbook of Cultural Gerontology, London: Routledge, pp 269–76.
Fritsch, K. (2010) Intimate assemblages: disability, intercorporeality, and the labour of attendant care, Critical Disability Discourse/Discours Critiques Dans le Champ du Handicap volume 2. Retrieved from http://pi.library.yorku.ca/ojs/index.php/cdd/article/viewFile/23854/28098.
Gerlach, A.J., Browne, A.J. and Greenwood, M. (2017) Engaging indigenous families in a community-based indigenous early childhood programme in British Columbia, Canada: a cultural safety perspective, Health & Social Care in the Community, 25(6): 1763–73.
Ginsburg, L., Berta, W., Baumbusch, J., Rohit Dass, A., Laporte, A., Reid, R.C., Squires, J. and Taylor, D. (2016) Measuring work engagement, psychological empowerment, and organizational citizenship behavior among health care aides, Gerontologist, 56(2): e1–11.
Glenn, E.N. (2010) Forced to Care: Coercion and Caregiving in America, Cambridge, MA: Harvard University Press.
Guest, G., Bunce, A. and Johnson, L. (2006) How many interviews are enough? An experiment with data saturation and variability, Field Methods, 18(1): 59–82.
Gunaratnam, Y. (2001) “We mustn’t judge people … but”: staff dilemmas in dealing with racial harrassment amongst hospice service users, Sociology of Health & Illness, 23(1): 65–84.
Johnson, S., Bacsu, J., McIntosh, T., Jeffrey, B. and Novik, N. (2017) Home Care in Canada: An Environmental Scan, Regina, SK: Saskatchewan Population Health and Evaluation Research Unit, University of Regina and University of Saskatchewan.
Keefe, J., Knight, L., Anne, M.M. and Légaré, J. (2011) Key issues in human resource planning for home support in Canada, Work, 40(1): 21–8.
Kelly, C. (2017) Exploring experiences of personal support worker education in Ontario, Canada, Health & Social Care in the Community, 25(4): 1430–8.
Kelly, C. and Bourgeault, I. (2015) The Personal Support Worker Program standard in Ontario: an alternative to self-regulation?, Health Policy, 11(2): 20–6.
Kelly, C., Jamal, A., Aubrecht, K. and Grenier, A. (2020) Emergent issues in directly-funded care: Canadian perspectives, Journal of Aging & Social Policy, doi: 10.1080/08959420.2020.1745736.
Kröger, T. (2009) Care research and disability studies: nothing in common?, Critical Social Policy, 29(3): 398–420.
Laporte, A. and Rudoler, D. (2013) Assessing Ontario’s personal support worker registry, Health Reform Observer–Observatoire des Réformes de Santé, 1(1): 1–11.
Macdonald, C.L. and Merrill, D.A. (2002) “It shouldn’t have to be a trade”: recognition and redistribution in care work advocacy, Hypatia, 17(2): 67–83.
McGuigan, K., McDermott, L., Magowan, C., McCorkell, G., Witherow, A. and Coates, V. (2016) The impact of direct payments on service users requiring care and support at home, Practice, 28(1): 37–54.
Miles, M.B. and Huberman, A.M. (1994) Qualitative Data Analysis, Newbury Park, CA: Sage.
Murphy, M. (2015) Unsettling care: troubling transnational itineraries of care in feminist health practices, Social Studies of Science, 45(5): 717–37.
Nakaishi, L., Moss, H., Weinstein, M., Perrin, N., Rose, L., Anger, W.K., Hanson, G.C., Christian, M. and Glass, N. (2013) Exploring workplace violence among home care workers in a consumer-driven home health care program, Workplace Health & Safety, 61(10): 441–50.
Nishida, A. (2017) Relating through differences: disability, affective relationality, and the U.S. public healthcare assemblage, Subjectivity, 10: 89–103.
Ottmann, G., Allen, J. and Feldman, P. (2009) Self-directed Community Aged Care for People with Complex Needs: A Literature Review, Retrieved from Melbourne, Australia: http://hdl.handle.net/10536/DRO/DU:30054684.
Ottmann, G., Allen, J. and Feldman, P. (2013) A systematic narrative review of consumer-directed care for older people: implications for model development, Health & Social Care in the Community, 21(6): 563–81.
Parsons, J.A. (2008) Key informant, in P. Lavrakas (ed) Encyclopedia of Survey Research Methods, Thousand Oaks, CA: Sage.
Pope, C., Ziebland, S. and Mays, N. (2000) Qualitative research in health care: analysing qualitative data, British Medical Journal (Clinical Research Edition), 320(7227): 114–16.
Saari, M., Patterson, E., Kelly, S. and Tourangeau, A.E. (2018) The evolving role of the personal support worker in home care in Ontario, Canada, Health & Social Care in the Community, 26(2): 240–9.
Sánchez Criado, T., Rodríguez-Giralt, I. and Mencaroni, A. (2016) Care in the (critical) making. Open prototyping, or the radicalisation of independent-living politics, ALTER–European Journal of Disability Research/Revue Européenne de Recherche sur le Handicap, 10(1): 24–39.
Sevenhuijsen, S. (1998) Citizenship and the Ethics of Care: Feminists Considerations on Justice, Morality and Politics, New York: Routledge.
Shakespeare, T., Stöckl, A. and Porter, T. (2018) Metaphors to work by: the meaning of personal assistance in England, International Journal of Care and Caring, 2(2): 165–79.
Simplican, S.C. (2015) Care, disability, and violence: theorizing complex dependency in Eva Kittay and Judith Butler, Hypatia, 30(1): 217–33.
Sims-Gould, J., Byrne, K., Tong, C. and Martin-Matthews, A. (2015) Home support workers’ perceptions of family members of their older clients: a qualitative study, BMC Geriatrics, 15(1): 165. https://bmcgeriatr.biomedcentral.com/about?gclid=CjwKCAjw19z6BRAYEiwAmo64LQsVismpDhrgDs4VJb6EDyPEQfJYlA0b1xmVFevf4Q5fwCItinFW_xoC0GwQAvD_BwE.
Squires, J.E., Hoben, M., Linklater, S., Carleton, H.L., Graham, N. and Estabrooks, C.A. (2015) Job satisfaction among care aides in residential long-term care: a systematic review of contributing factors, both individual and organizational, Nursing Research and Practice, 24. https://pubmed.ncbi.nlm.nih.gov/26345545/
Stone, D.A. (2000) Caring by the book, in M.H. Meyer (ed) Care Work: Gender, Class, and the Welfare State, New York: Routledge, pp 89–111. https://pubmed.ncbi.nlm.nih.gov/26345545/.
Toews, R. (2016) Future of Home Care Services in Manitoba, Winnipeg: Government of Manitoba, Ministry of Health, Seniors and Active Living.
Tronto, J.C. (2013) Caring Democracy: Markets, Equality and Justice, New York: NYU Press.
Watson, N., McKie, L., Hughes, B., Hopkins, D. and Gregory, S. (2004) (Inter)Dependence, needs and care: the potential for disability and feminist theorists to develop an emancipatory model, Sociology, 38(2): 331–50.
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